The world just aint as it seems

General forum for the UK Keratoconus and self-help group members.

Click on the forum name, General Discussion Forum, above.

Moderators: Anne Klepacz, John Smith, Sweet

User avatar
Janet Manning
Regular contributor
Regular contributor
Posts: 98
Joined: Thu 25 Mar 2004 9:44 am
Location: Abingdon,Oxfordshire

Postby Janet Manning » Tue 16 May 2006 8:49 pm

I find this very interesing as recently I kept seeing what seemed to be either a black mouse or a large black insect in my peripheral vision, running e.g. along the skirting board or the back of the kitchen work top.

In homeopathy this is an indication for several remedies and proved to be the case. I was subsequently prescribed a remedy for eczema, which also included this symptom and the little black running things have gone away!

User avatar
cherishu2
Chatterbox
Chatterbox
Posts: 153
Joined: Fri 03 Jun 2005 9:12 am
Keratoconus: Yes, I have KC
Location: leicestershire

Postby cherishu2 » Tue 16 May 2006 9:07 pm

you mean my ghost isnt a ghost after all.
Ive been seeing a black shadow out the corner of my eyes for month but though it was a ghost or somat.
I know i can see curtains move etc when i know they cant be,
Think im almost disappointed actually lol.
My ghost is much more exciting

User avatar
Drew Radcliffe
Regular contributor
Regular contributor
Posts: 142
Joined: Tue 30 Mar 2004 9:02 pm
Keratoconus: Yes, I have KC
Location: Cardiff

Postby Drew Radcliffe » Tue 16 May 2006 9:49 pm

This really is quite fascinating.

Are we all getting some kind of visual halicination at one time or another?

Is this linked to the way we interpret the the confusing images that KC generates?

Is there a link between this and Charles Bonnet Syndrome or is there something else that we don't know?

Guess it would require a researcher to look at this.

User avatar
Lynn White
Optometrist
Optometrist
Posts: 1398
Joined: Sat 12 Mar 2005 8:00 pm
Location: Leighton Buzzard

Postby Lynn White » Wed 17 May 2006 7:28 am

Yes this is linked to Charles Bonnet but because of the lack of reporting cases like this for obvious reasons (people afraid of being thought crazy) its not really been thought of as being a problem with KC. I myself throught Drew was prone to it because he has other ocular probs beside KC.

I think I will now email those experts the RNIB suggested and talk to them about it!

Thank you very much for the information everyone. And hmm Janet, I think it might be a good idea to chat to you about the homeopathic remedy you used there!

I am away at my conference for a couple of days but will chase all this up when I come back.

Lynn

User avatar
GarethB
Ambassador
Ambassador
Posts: 4916
Joined: Sat 21 Aug 2004 3:31 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: Warwickshire

Postby GarethB » Wed 17 May 2006 7:36 am

Lynn,

Should't you be opeing the doors to let the frist patient of the day in?

To be honest I think we get so wrapped up in trying to improve our vision, the last thing we want to admit to is the shadows we see in whatever form.
Gareth

User avatar
Lynn White
Optometrist
Optometrist
Posts: 1398
Joined: Sat 12 Mar 2005 8:00 pm
Location: Leighton Buzzard

Postby Lynn White » Wed 17 May 2006 7:41 am

Heh I am supposed to be getting ready to go to my conference Gareth... :)

User avatar
GarethB
Ambassador
Ambassador
Posts: 4916
Joined: Sat 21 Aug 2004 3:31 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: Warwickshire

Postby GarethB » Wed 17 May 2006 8:46 am

Ahhh, I see, it's doobry thing whatsit day :D

Have fun and you have my permission to make a real nusance of yourself just to get the KC patient/optom viewpoint across.
Gareth

User avatar
Sweet
Committee
Committee
Posts: 2240
Joined: Sun 10 Apr 2005 11:22 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: London / South Wales

Postby Sweet » Wed 17 May 2006 8:55 am

Hehe Gareth you NEVER need to give your permission to be a nuisance!! :roll: :P

Lynn hope you have a good time and get to London in one piece!! :lol:

Sweet X x X
Sweet X x X

Image

User avatar
Anne B
Champion
Champion
Posts: 754
Joined: Thu 15 Sep 2005 1:22 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and spectacles
Location: Hertfordshire

Postby Anne B » Wed 17 May 2006 12:24 pm

I think i may suffer from the same problems.

I quiet often when walking stop and jerk back as if i am stopping myself from bumping into something thats not there!

I see dark shapes out of the corner of my right eye( My worse eye).

I always point out things to my family and then have to be corrected because its something totally different!

And my worse problem (and i have mentioned this before)is that people and objects seem transparent!

I have always put all this down to using guess work rather than my eyes, if that makes any sense.

Anne

User avatar
GarethB
Ambassador
Ambassador
Posts: 4916
Joined: Sat 21 Aug 2004 3:31 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: Warwickshire

Postby GarethB » Wed 17 May 2006 12:35 pm

I think this reporting of dark areas is why we become light sensitive.

Once vision is corrected, these dark spots suddenly reciev light for the first time in ages and it hurts.

Since being ale to wear lenses for a reasonable amount of time, my light sensitivity is reducing.
Gareth


Return to “General Discussion Forum”

Who is online

Users browsing this forum: No registered users and 18 guests