cxl on children

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kittikat
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cxl on children

Postby kittikat » Sun 27 Sep 2015 9:03 pm

Hi My 11 year old son is booked in to have the cross linking on both eyes in a few weeks. Can anyone give me any advice on this please? He is being put to sleep to have it done. How painful will it be for him after and how long will his vision be blurry for after the procedure?? Would love to hear off anyone who has a child of a similar age that has had it done.
Thanks in advance

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Anne Klepacz
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Keratoconus: Yes, I have KC
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Re: cxl on children

Postby Anne Klepacz » Tue 29 Sep 2015 11:27 am

Hello kittikat and welcome to the forum,
I don't know if you've seen this information leaflet, which answers some of your questions http://www.moorfields.nhs.uk/sites/defa ... king_4.pdf
From what I've read on this forum from people who have had CXL done, the first 24hrs or so after the procedure can be pretty painful, though painkillers will be prescribed. Of course, everybody's different, but the blurriness usually lasts for a few weeks. I'm not sure we have any forum users who have children of a similar age who have had it done, though I do remember a 12 year old going to Dresden for the procedure quite a few years ago now before CXL was available in the UK.
All the best
Anne

kittikat
Newbie
Newbie
Posts: 2
Joined: Sun 27 Sep 2015 8:45 pm
Keratoconus: No, I don't suffer from KC

Re: cxl on children

Postby kittikat » Wed 30 Sep 2015 9:31 pm

Hi Anne
Thank you very much for the link. We are all very anxious and my son has to make the decision whether to have just 1 eye done at a time or get both done at once, which is what the surgeon would prefer so he doesn't have to put him to sleep twice.

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Anne Klepacz
Committee
Committee
Posts: 2300
Joined: Sat 20 Mar 2004 5:46 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses

Re: cxl on children

Postby Anne Klepacz » Sat 03 Oct 2015 3:19 pm

Is it your son's young age that means he'd be having CXL done under a general anaesthetic? As it's a minimally invasive procedure, it's usually done with just a local anaesthetic though it may be different in this age group.


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