woke up with KC? confused

[jayjay03]

Hi people )

I started getting some blurry vision 2weeks ago and quickly booked an appointment at specsavers. I dont where glasses altho i think i should have needed them for last few years but never really bothered me.

I had an eye test and did terrible and was told would need some glasses and she also wrote suspect keractonus sciccor reflex seen.I was very scared asking her what the hells that and she told me about it and said dont worry yourself and gave me a letter to give to my gp to refer me.So since then i read load of stuff up and got in a big deppression not really going out cause my blurry vision. But i also suffer a condition called lyme disease so i thought no it has to just be another Lyme symtom because i get many different symptoms all the time.

In the end i was so scared and went to morfileds a nd e had a little test there my right eye was perfectly fine on the chart which was diff storry to the opticians but left eye was terrible just letters where a blur untill she gave me these pin glasses i could read some of the lines. Anyway after load of tests at moorfiled they guy saw me and said your vision is fine in your right eye anyway and cant see any probs with your eyes. I Then told him about the opticians and the scicoring reflex and he said oh this could be Keractonus and therefore you would need be reffered and have more tests.

So i went home and funnily enough i spoke to a friend and told him why i had been ill resently when i told him about my vision probs he said i know how you feel i have them also i was like really whats up he said i have something where the shape is not round i asked him the name and said keratoconus i was like dam thats what i may have.He said there going to send me Morfileds and told me the procedures and said i should go to a place called Accusvsiin.


I went there asap and had eye test done which again my right eye seemed to be fine today well a lot better then my left eye where everythings just getting blurry untill he went through the lenses and got my vision better.Then he took me in another room and done some scanning on my eye i was crossing all my fingers but unfortunatly he said come and take a look. H eshowed me a 3d image of my cornea and said look if u look it looks round and perfect shape but then said if i look at this map i can see its not and was thin he said i think 430microms or somthing.


He said the left eye is worse and the right eye has just started to get effected and spoke about all the options and said nhs are picky about the crosslinking and you could wait forever.So im just so confused do i 100 percent have it welll i think i do and being indinial.



But i dont get how i can be fine everyday not even wear glasses then wake up with this blurry vision.And the 0ther day i would walk out to my car and people few metres away would look blurry but now week later its not that bad.

I do use the laptop everyday and also was wearing soft coloured contact lenses for fashion but stopped wearing them about 1 motnh ago before any of this and ony wore them about 6months. I just dont get it did i mess my own eyes up wearing the contacs or im sure this bloody lyme disease has caused this is messes everyhting else up but every eye person said no its not lymes.But thats the thing lot docs dont no alot about Lyme.

Im using my laptop now and just seems everythings hard work just focusing on the text and stuff i really dont know how this happened overnight tho my mate with it even said he was wearing glases for years. Sorry for rmabling on.

And also what would people advise me to do my firned is saaying run adn get cxl done asap but i was thinking to wait for the nhs appointment to see if they confirm i have this condition.


My biggest fear is i use the laptop everyday and its part of my life will things look clearer with contacts on or glasses


Thankyou people hope your all doing ok as can be also sorry for all the bad spelling im bit to stressed and eyes tired to correct it all.

[CrippsCorner]

Hi and welcome to the forum. That sounds like a scary situation I'm sorry you've had to go through that! I personally haven't heard of this condition coming on so strongly over night as it were, but then I'm a relative newbie myself. Hopefully someone with more experience can help with this.

As for CXL (cross-linking) I've had it performed in both eyes and it wasn't without it's issues (currently 6 months on, my vision is actually much worse in one of my eyes) but in general it's definitely a good idea to get it done. It's all about time with keratoconus, if you're going to do something... get it done as soon as possible! What's the point in waiting for it to get worse first? You can never reverse this thing. If you're going the NHS route (I couldn't, and had to pay unfortunately) maybe get on the list, I'm sure you can always cancel if you change your mind. Just for reference the waiting list for getting it done privately was just a week or two!

Olly

[Anne Klepacz]

Hi Jayjay,
First of all, stop feeling guilty! You didn't mess up your own eyes by wearing soft lenses. And it's unlikely to have happened suddenly. What happens with a lot of people is that one eye has good vision so the brain just switches to that eye and ignores the fact that the other eye isn't much good. And it's only after a while, as the 'bad' eye gets worse, that the brain suddenly decides it can't cope with the mess from that eye any longer, and that's when people suddenly notice their vision is blurred. And of course, if you then cover the good eye, you realise quite how blurry the bad eye is! Also, like many conditions (I think it's true of Lyme's as well), it can vary from day to day or week to week. So it's not unusual to find some days the vision seems a lot better than others.
If you do have KC glasses might well give you better vision and contact lenses definitely would. And as your friend told you, there's now the option of CXL to stop further progression. Whether you get that done privately or on the NHS is obviously up to you. But if you have a referral to Moorfields, they now have what they call an 'early keratoconus clinic' for new referrals, where people are automatically assessed for CXL. http://www.moorfields.nhs.uk/sites/defa ... clinic.pdf
So although all this was obviously a shock to you, and not what you need when you already have another health condition, don't panic - there's lots that can be done.
If you'd like our information booklet about KC, just e-mail your postal address to anne@keratoconus-group.org.uk and I'll send one to you.
I'm glad you found this forum where you can ask as many questions as you like!
All the best and let us know how you get on.
Anne

[jayjay03]

Thanks so much for the replies means a lot . Maybe your right about that because when i cover my right eye the other is blur so so scary i just keep blamming myself thinking i done the damage with the contact lens wear.

[Anne Klepacz]

While badly fitting hard lenses can sometimes scratch the cornea, you really won't have done any damage by using soft lenses. So please stop blaming yourself! There are lots of us here who have KC and know what it's like, so you're not on your own.