I fit the majority of symptoms for keratoconus but..
Moderators: Anne Klepacz, John Smith, Sweet
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Jjoe
- Contributor

- Posts: 22
- Joined: Wed 13 Mar 2013 9:11 pm
- Keratoconus: Yes, I have KC
- Vision: I'm coping with no aids
I fit the majority of symptoms for keratoconus but..
Since January 2012 I've had significant problems with my eyes, including ghosting, starbursts, halos, sensitivity to light ect. I've been tested with various methods and on multiple occasions (Corneal Thickness, Focusing ect.) but yet no diagnosis has been made, which really is starting to make me feel like life's just not worth it. I'm asking if anyone took their time to get diagnosed after their first problems occurred or if they know any other potential causes. I had anxiety and depression issues prior to this but I've not seen any indications they are related.
- Anne Klepacz
- Committee

- Posts: 2300
- Joined: Sat 20 Mar 2004 5:46 pm
- Keratoconus: Yes, I have KC
- Vision: Graft(s) and contact lenses
Re: I fit the majority of symptoms for keratoconus but..
Hi Jjoe,
It used to be much more common for it to take a long time for KC to be diagnosed, less so now that there's so much new technology like corneal topography. But in some cases it can be difficult to be sure what's going on, and we have had some people here who were initially told they had KC only to be told some time later that it was actually a different corneal condition. But I know how hard it is when you're not sure what's going on - it's always easier once you have a diagnosis and know what you're dealing with. In your other thread you were talking about getting a second opinion. Did you end up doing that? I don't know what part of the country you're in, but usually eye departments in the hospitals of big cities tend to see a lot of people with KC and similar conditions and have the most experience.
All the best
Anne
It used to be much more common for it to take a long time for KC to be diagnosed, less so now that there's so much new technology like corneal topography. But in some cases it can be difficult to be sure what's going on, and we have had some people here who were initially told they had KC only to be told some time later that it was actually a different corneal condition. But I know how hard it is when you're not sure what's going on - it's always easier once you have a diagnosis and know what you're dealing with. In your other thread you were talking about getting a second opinion. Did you end up doing that? I don't know what part of the country you're in, but usually eye departments in the hospitals of big cities tend to see a lot of people with KC and similar conditions and have the most experience.
All the best
Anne
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