When I was diagnosed with bilateral KC way back in approx 1980 I can clearly remember the fear and isolation I felt. I can honestly say I didn't speak or know of another person who had it for the first 15 - 20 years. Then some years ago I found your website - the work you people do who run and moderate this group is absolutely invaluable. The support given to us all in priceless. Thank you all again
Kind regards
Libby
