KC Luton and Dunstable

[ahmed1]

I kind of now feel m being forced to take surgery:( he will not help anyways apart from it:( he cannot give me any guarantees but indirectly guaranteed op is always successful and waiting time short:( not so from many I read about in let off steam part:( I don't want a professional who doesnt want to help me now:( unlucky me:(

[ahmed1]

I want to leave opthamalogist:( indirectly guarqnteeing short. Wait list and perfect post op everythingeven though I have read to the contrare in let of steqm part:( he won't help me only a surgeon:( feeling forced to take something or no help anyways:(

[ahmed1]

One is not legally blind with my aquitiea? My best eye left eye is 6 60 ( I think he said that...or.was it 1 60. The other one doesnt have a number he just.said counting fingers but my Allah he doesn't want to register even partially sighted so what's the point:(

[ahmed1]

Lynn he is called Dr Allon Barsam he is in linkedin. He has got good background in KC and moorfield hospital so why cant he be.equally good with understanding whqt you.know is true:( if Dr barsam understood I wouldn't be so depressed:(

[Lynn White]

Fatima,

If you have 6/60 on one eye, then no, you are not legally blind. If the left eye was 1/60, then, yes, you would be. If you are not sure or cannot remember the exact figures, then you may be even slightly better than this in the left eye. This may be a reason for your consultant not registering you.

Click on this link to find the full, official, definition of blindess and partial sight

http://www.rnib.org.uk/livingwithsightloss/registeringsightloss/Pages/vision_criteria.aspx

The problem is that the definition of blindness was drawn up in the 1870's and related to whether you were too disabled to do manual work. It bears no relation to the demands of modern life.

Lynn

[GarethB]

I kind of now feel m being forced to take surgery:( he will not help anyways apart from it:( he cannot give me any guarantees but indirectly guaranteed op is always successful and waiting time short:( not so from many I read about in let off steam part:( I don't want a professional who doesnt want to help me now:( unlucky me:(

When it comes to grafts / transplants no specialist will give a guerentee because rejection is always a posibility although as far as I am aware much reduced when it comes to corneas.

I've also never come across a specialist that will gaurntee the outcome such as VA because the graft / transplant just like most other surgery for KC because the purpose is to make the corneal shape more regular so making vision correction easier.

[ahmed1]

OoO I need to.find that number out. M sure he said look to the future then Fajr register you with.any.of them as can wear contacts in the.left e6e then when carolyn said give.her contacts he said no left eye too bad so it doesn't even make sense:s either I hav3 lenses or not:(.don't confuse me:(

[ahmed1]

Gareth.m he said he.done about 270 transplants and my friend carolyn trusts him so much she is -it happy m on this forum lol. Actually I don't get what these numbers mean. All i know is that with left eye.I saw.the tops of letter A 3.times going out into the ceiling then with the pinhole only letter.A. I did.squint as i do in real so I don't know if the nurse took it into account. I don't know what my anything is only that if an6one expects me to see with left eye with my right.eye as.blind well I might as well stop living as I can't see with it:( what is wrong with the medics:( my quality of life already.dead m expected to carry on happily with no help:(

[GarethB]

You will be surprised at how well you can adapt. Until I tried soft lenses I was at the point the hospital said they could do no more for my right eye and because I had already had a graft and KC had returned to the host cornea I was told a regraft was too risky.

As I was becoming intolerant to lenses I was already alternating between which I I could see out of and spent a good few years seeing out of one eye. Once I was used to it, it wasn't too different to seeing out of both. There are many people in the world that only have vision in one eye that lead a perfectly normal life. I have met many people through low vision clinics that are blind and lead a very active life despite the need for a white stick or guide dog to get about the place.

From what you describe sounds similar to the position I was in before my first graft which I had immediatly after my A levels in July 1989 and I started my degree in September of the same year studying micro-biology while registered legally blind. By July 1990 when I had my second graft I had sufficient in the grafted vision I could catch up on all the practical assessments that I was unable to do in the first year. Admitedly there were things I was unable to do but despite that the lack of vision never did anything to stop me living life to the full and starting something new in London after living for years in a quiet village in the North East.

The numbers you mention are basically comparing what you see to what a normal person would see. Therefore 6/60 menas that you see something at 6 meters away which a normal person would be able to see at 60 meters. Therefore the vision I get 6/5 means I see at 6 meters what a normal person would see at 5 meters distance so better than normal. That is admitedly corrected in both eyes which have grafts at 23 years for the right and 22 years for the left. Without lenses the right is 6/60 and the left is 6/18.

[ahmed1]

Oh gareth thank you for the encouragement. However my eye is not the. Only problem with my overall health m one of those Lynn listed:(