waiting in the mail for me

[space_cadet]

Got back from my honey moon yesterday (update to come on that with pics) to find a appointment for this wedsnesday the 16th which is a day before my birthday for the contact lens department to try RPG's.

The consultant said he would try get me a fast appointment post honeymoon, this I believe is how NHS LEEDS should of been operating instead of the sham I had to endure for the last 10 years with my eyes, 3 specific with eye centres and eye people who had no idea, tests galore, an eventual diagnoses back in may.

So yeah maybe I will be able to see my bday with a bit of help.. never know.

[Andrew MacLean]

Lea

All the best with your RGP's They are still the standard recourse for people with keratoconus, and in the view of some optometrists the best.

If they don't work out, then you know well that there are other options,.

All the best

Andrew

[space_cadet]

Andrew, you as everyone should know by now I don't stand for $h!t when it comes to anything so if the RPG's (dyslexic moment rpg or rgp?*) don't help then I shall kick off!

Thanks to the experiences you have all shared, and the wealth of information, support, guidence, I have been privilidged to read on here since being dx I am in a position where I will challenge the system if needed. Just hopingdoes what it should rathter than as sadly we all find out we have to research into what they should offer as a alternative.

fun times ahead! but I am sure with this community on this forum's support I will be able to offload and find myself back on my feet if they try and knock me down.

Lea
xox

[Andrew MacLean]

[space_cadet]

Sometimes it takes a ickle crazy space cadet to be placid during a apointment then go into kick up the a**e mode when she doesn't get what she knows she is entitled to, but as I said I hope this time is different.

[Lizb]

dont expect to walk out of the contact lens appointment with lenses you can get useable vision in after the first appointment. depending on what they try you with, they are likely to have to order the correct prescription for you.
The clinic probably will only have fitting kits, not lenses in every prescription going.

It will take a few fittings to get the right ones for you, and that is if you get on with the first set of lenses they try you with.

godd luck for your appointment next week.

[Andrew MacLean]

GPR = GROUND PENETRATING RADAR! (I like this game, Martin!)

Liz is, of course, right. Realistic expectations can help avoid big disappointments.

All the best

Andrew

[space_cadet]

I know realisticly that I wont get the vision I crave first go - but the dream is still there.

I am crud at acranyms unless its ones I have used a fair bit and have set in my mind. but dyslexia kicks in and creates issues if you lke.

[rosemary johnson]

Good luck with the appointmnet on wednesday, Lea.
I'm sure I don't need to say "Let us know how you get on".
As regarded that acronum - "hard" cntact lenses are made of one of a range of Rigid Gas Permeable plastics these days.
These are designed to let air percolate through the structure so your cornea can "breathe" under the contact lens.
What a lot of people mean when the say "RGP lenses" is actually CORNEAL lenses - about 8mm in diameter, just big enough to cover your iris.
In fact, scleral lenses are also RGP lenses as they too, these days, are made of rigis gas permeable plastic.
Before the RGP plastics came along, oh, about 18 years ago, all hrd lenses were made of "PMMA". That's an acrunym for a long and complicated chemical name, for a substance better known as "Perspex" (a brand name).
Before THAT, contact lenses were made of glass. SOmeone who used to wear glass lenses came to a group meeting at moorfields a few years ago.
Perspex lenses did not "breathe" like RGP plastics do, so my early ones had little airholes drilled in them to let air through.
People used to see these as little black speckles at the edge of my iris and say "Have you got something in your eye?" - and were most surprised to get the answer "Oh, that's the air hole in my contact lens."
The RGP lenslens, when I first got one, didn't need these and was much more confortable..... usually........
.... but in those days, they were just called "GPs" - "fas permeables". I suppose everyone assumed they'd be rigid.
Back to the acronyms:
GRP = glass reinforced plastic (=fibreglass)
Anyno going to do PRG and PGR?
Rosemary

[Andrew MacLean]

I have moved the two latest acronym posts to a new string in the Non-KC chit chat area.