YORKSHIRE N HUMBER

General forum for the UK Keratoconus and self-help group members.

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space_cadet
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West Yorkshire? Anyone out there?

Postby space_cadet » Sun 12 Jul 2009 8:45 pm

I am debating settingup a west yorkshire (Leeds) source of support for KC, a regional sub group. Would anyone be willing ot assist with this?
May09 Diagnosed with KC, March 2010 after a failed transplant it has left me legally blind a long cane user (since 2010) who is blind in a once sighted world

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MartinC
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Re: West Yorkshire? Anyone out there?

Postby MartinC » Mon 13 Jul 2009 9:43 pm

Im near Huddersfield so def. in West Yorks! Would be happy to come along and say hello, but not much time for much else I'm afraid......

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space_cadet
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Re: West Yorkshire? Anyone out there?

Postby space_cadet » Mon 13 Jul 2009 11:00 pm

Any welcome just feel so isolated in this county.
x
May09 Diagnosed with KC, March 2010 after a failed transplant it has left me legally blind a long cane user (since 2010) who is blind in a once sighted world

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MartinC
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Keratoconus: Yes, I have KC
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Re: West Yorkshire? Anyone out there?

Postby MartinC » Tue 14 Jul 2009 10:43 pm

Quite happy to chat if you like! :-)

PM me if you want, we can always meet for a coffee or something?

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Michelle Oates
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Re: West Yorkshire? Anyone out there?

Postby Michelle Oates » Tue 21 Jul 2009 3:32 pm

Hi im in south humberside the other side of the water but yes id be interested.

I have to come to leeds st james anyway for the graft

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space_cadet
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Keratoconus: Yes, I have KC
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Re: West Yorkshire? Anyone out there?

Postby space_cadet » Wed 22 Jul 2009 10:24 pm

I live a 10 min walk from Jimmy's.
xox
May09 Diagnosed with KC, March 2010 after a failed transplant it has left me legally blind a long cane user (since 2010) who is blind in a once sighted world

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space_cadet
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Posts: 962
Joined: Tue 12 May 2009 11:46 pm
Keratoconus: Yes, I have KC
Vision: Other
Location: Leeds
Contact:

Re: West Yorkshire? Anyone out there?

Postby space_cadet » Wed 29 Jul 2009 3:33 pm

May09 Diagnosed with KC, March 2010 after a failed transplant it has left me legally blind a long cane user (since 2010) who is blind in a once sighted world

jackma
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Re: West Yorkshire? Anyone out there?

Postby jackma » Sat 01 Aug 2009 10:06 pm

Hi, I'm also in Leeds. Not been on here for a while but had a graft 2.5 years ago. Happy to meet up with some other KC people. Let me know if that would be helopful. Jack

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space_cadet
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YORKSHIRE N HUMBER

Postby space_cadet » Sat 12 Sep 2009 11:06 pm

Ok I am back and a married lady as of 2 weeks. Lets get a Northern group sorted, particularly for Yorkshire n the Humber.

Anyone want to help?

Lea
xox
as we need it as there is nowt or owt to 'see' so I feel it is down to us to 'enlighten' the region I am ashamed as of recently to say I am living within but have a determination that will enable it to overcome many obstacles to ease the pain, angst, frustration, anger, meh, suffering I have and I am sure many of you have had to put up with in regards to KC lets get this awareness started.

If you want to help me then speak up, and out, loud and proud.

I will carry on bugging you all untill others of you join me to get awareness raised, and a safe space for us to talk about our experiences.
May09 Diagnosed with KC, March 2010 after a failed transplant it has left me legally blind a long cane user (since 2010) who is blind in a once sighted world

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Andrew MacLean
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Re: YORKSHIRE N HUMBER

Postby Andrew MacLean » Wed 16 Sep 2009 3:43 pm

If there is any demand for a Yorkshire and Humber group forum, I am sure that John can set that up in the same form as the other local group forums.

All the best with this initiative. I'll leave this anchored on the front page of the General Discussion Forum for a week or two.

Andrew
Andrew MacLean


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