Hi all,
I have a query and would like to know if anyone had a similar problem in the past. I had a PK 6 months ago and being honest my eye still feels quite sore.
Saw the Doctor 2 weeks ago and my pressure was 40 which I believe is quite high. Because of this, I have been changed over from Maxidex to Lotemax twice a day which I think is milder along with Timolol and Travatan for my pressure.
Is Lotemax as good as Maxidex ? When do people normally come off steroids as this is the start of my seventh month.
I would like to know if having a sore eye is normal at this stage and if it will eventually subside. It feels tight all the time and I wonder if my stitch is too tight. I know I have a cornea step and wonder if this may be the problem.
Also,is it safe to buy an exercise bike. I have put it off for a while thinking it affect my graft
Regds,
Liam
Cornea graft at 6 Months
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Andrew MacLean
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Re: Cornea graft at 6 Months
Liam
Yes, I think 40 is pretty high.
Don't worry too much about them changing your steroid drops: I think they often do this as your graft becomes more well healed. They changed me from Dexamethasone to Prednisalone at about the same stage.
The reason they are so careful about IOP is that steroids can cause this to go up; in your case I guess they are trying to combine a reduction in your IOP along with controlling any inflammation of your graft.
All the best
Andrew
Yes, I think 40 is pretty high.
Don't worry too much about them changing your steroid drops: I think they often do this as your graft becomes more well healed. They changed me from Dexamethasone to Prednisalone at about the same stage.
The reason they are so careful about IOP is that steroids can cause this to go up; in your case I guess they are trying to combine a reduction in your IOP along with controlling any inflammation of your graft.
All the best
Andrew
Andrew MacLean
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rosemary johnson
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Re: Cornea graft at 6 Months
Hi Liam,
SOrry to hear about the high pressure and sore eye problems.
They tried transferring me to Lotemax from maxidex and I didn't tolerate the lotemax at all, so had to stop it very quickly (I have problems with steroids .... long story). It is allegedly milder but more penetrating.
WHen you talk of sore eye, has this been the same, better, worse, or as bad but different in quality since they started you on the pressure-reducing drops?
I would think that pressure of 40 might well make your eye feel loated and uncomfortable. I was diagnosed with high pressure and mine felt like, well, like it had been blown up with a bike tyre pump and not very happy. THough someone will no doubt suggest that was paranoia!
I also found that Travatan itself made the ye go red and sore and the eyelids go swollen and get lots of spots round the eyelash roots. The hospital said this would wear off after a couple of weeks, but it never did fully.
THe travatan also aggravated my asthma, so I changed to a different sort of drops - Lumigan, which is the same family of chemicals but a different brand THis was better, but when I stopped the steroid eye drops (maxidex) I got all the symptoms of the bad reaction to travatan back from the LUmigan - it was like, the anti-=inflammatory action of the steroids was keeping the inflammation from the pressure-reducing drops down, and when I stopped, the reaction flared up.
It eased a bit after a few weeks - and I took a unilateral decision to reduce the dose to keep the bad reaction at bay..... as the pressure was OK again last appointment.
I've never been on timolol (as it would interfere with my various asthma inhalers) so don't know if that might have a similar reaction.
I was on the steroid drops for just over 11 months - and was rather annoyed to find that my corneal consultant had apparently told the glaucoma clinic consultant three months earlier it was OK by her if he wanted me to stop the steroids then if he thought it better (the steroids can cause the pressure to go up).
These days, some people can be on the steroids for a year or even 18 months. Not so long ago, it was more usual to stop them sooner. Stopping too soon may mean a rejection episode, which is a nuisance. On the other hand, too much steorids can lead to raised pressure, cataracts and other bad reactions to the steroids so it is a balancing act.
as regards exercise bikes - gentle aerobic exercise is probably healthy, but anything where you exert a sudden strain or heave is a bad idea. SO some gentle indoor cycling (!) probably wouldn't hurt, but lugging the exercise bike in from the car boot and setting it up probably isn't a good thing! - aparticularly with pressure of 40 or so.
Do you ahve another appointment for them to check out the pressure and see what effect the medications are having?
Rosemary
SOrry to hear about the high pressure and sore eye problems.
They tried transferring me to Lotemax from maxidex and I didn't tolerate the lotemax at all, so had to stop it very quickly (I have problems with steroids .... long story). It is allegedly milder but more penetrating.
WHen you talk of sore eye, has this been the same, better, worse, or as bad but different in quality since they started you on the pressure-reducing drops?
I would think that pressure of 40 might well make your eye feel loated and uncomfortable. I was diagnosed with high pressure and mine felt like, well, like it had been blown up with a bike tyre pump and not very happy. THough someone will no doubt suggest that was paranoia!
I also found that Travatan itself made the ye go red and sore and the eyelids go swollen and get lots of spots round the eyelash roots. The hospital said this would wear off after a couple of weeks, but it never did fully.
THe travatan also aggravated my asthma, so I changed to a different sort of drops - Lumigan, which is the same family of chemicals but a different brand THis was better, but when I stopped the steroid eye drops (maxidex) I got all the symptoms of the bad reaction to travatan back from the LUmigan - it was like, the anti-=inflammatory action of the steroids was keeping the inflammation from the pressure-reducing drops down, and when I stopped, the reaction flared up.
It eased a bit after a few weeks - and I took a unilateral decision to reduce the dose to keep the bad reaction at bay..... as the pressure was OK again last appointment.
I've never been on timolol (as it would interfere with my various asthma inhalers) so don't know if that might have a similar reaction.
I was on the steroid drops for just over 11 months - and was rather annoyed to find that my corneal consultant had apparently told the glaucoma clinic consultant three months earlier it was OK by her if he wanted me to stop the steroids then if he thought it better (the steroids can cause the pressure to go up).
These days, some people can be on the steroids for a year or even 18 months. Not so long ago, it was more usual to stop them sooner. Stopping too soon may mean a rejection episode, which is a nuisance. On the other hand, too much steorids can lead to raised pressure, cataracts and other bad reactions to the steroids so it is a balancing act.
as regards exercise bikes - gentle aerobic exercise is probably healthy, but anything where you exert a sudden strain or heave is a bad idea. SO some gentle indoor cycling (!) probably wouldn't hurt, but lugging the exercise bike in from the car boot and setting it up probably isn't a good thing! - aparticularly with pressure of 40 or so.
Do you ahve another appointment for them to check out the pressure and see what effect the medications are having?
Rosemary
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