KC Stability.

General forum for the UK Keratoconus and self-help group members.

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Moderators: Anne Klepacz, John Smith, Sweet

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GarethB
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Posts: 4916
Joined: Sat 21 Aug 2004 3:31 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: Warwickshire

KC Stability.

Postby GarethB » Tue 21 Aug 2007 12:24 pm

Not posted for a while, but been away fulfilling other KC responsibilities to our members :D

Just before going on holiday last week had some excellent news in that since the re-emergence of KC in my grafted eye in August 2004, the vision is still unchanged. So depsite a rapid vision deterioration over three months we now have three years stability. Still on the original contact lenses too.

Got invited to chat with another KC patient who has only had lenses for 6 months and was having vision problems. Hopefully that person accepts they need to take more care of their lenses because they were filthy.

Why is it we are prepeared to listen to a fellow patient rather than the specialists trying to care for us?
Gareth

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Andrew MacLean
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Posts: 7703
Joined: Thu 15 Jan 2004 8:01 pm
Keratoconus: Yes, I have KC
Vision: Other
Location: Scotland

Re: KC Stability.

Postby Andrew MacLean » Tue 21 Aug 2007 2:24 pm

Excellent news, Gareth!

And thank you for giving another sufferer good advice on lens care.

Andrew
Andrew MacLean

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Anne B
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Posts: 754
Joined: Thu 15 Sep 2005 1:22 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and spectacles
Location: Hertfordshire

Re: KC Stability.

Postby Anne B » Tue 21 Aug 2007 6:05 pm

Thats really good news i bet your very pleased.

so was the person you saw with dirty lenses a member of the forum? are you going to name and shame? :lol:
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GarethB
Ambassador
Ambassador
Posts: 4916
Joined: Sat 21 Aug 2004 3:31 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: Warwickshire

Re: KC Stability.

Postby GarethB » Tue 21 Aug 2007 8:34 pm

The person knew nothing of the support group, but I left them with the support group business card.

Still working with the hospital powers that be to expand the Midlands group, still have the usual hurdle of too many support groups competing for the small amount of space on the notice board.
Gareth


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