Disappointed

General forum for the UK Keratoconus and self-help group members.

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Val G
Chatterbox
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Posts: 219
Joined: Wed 12 Oct 2005 7:01 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: West Midlands

Disappointed

Postby Val G » Mon 07 Aug 2006 6:20 pm

Hoping you lot can cheer me up a bit.
I went for my 8 month post graft check last week and was hoping to get prescribed some specs. I knew the refraction was not going too well as my vision didn't improve with any combination of lens. When I saw the registrar he said my cornea is looking too flat. I'm not going back for three months now when they may try a contact lens.
I'm trying to be positive, surely too flat is better than too baggy! at least it may 'plump' out if and when the stitches are removed.
Has anyone else had this?
My eyes have been very dry over the hayfever season. I have now been prescribed Lacrilub, a lubricating (surprise) ointment, to use at nights in my grafted eye. This has improved my comfort, but my vision has deteriorated.

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Matthew_
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Posts: 814
Joined: Thu 13 Jul 2006 3:13 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: Gallafrey

Postby Matthew_ » Mon 07 Aug 2006 9:19 pm

Val,
Cannot begin to imagine what it is like as I only have mild KC but I hope things perk up for you. Maybe things will improve over time.
All the best

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jayuk
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Posts: 2148
Joined: Sun 21 Mar 2004 1:50 pm
Location: London / Manchester / Cheshire

Postby jayuk » Tue 08 Aug 2006 7:20 am

Val

That is good not bad! I had/have the exact same thing...and in the longer term its better...as each suture comes out the cornea will more than likely come forward.....due to the inherent nature of the tissue........once they start removing the sutures things will / should get better........at least thats what My consultant has said to be from day one...and he hasnt been wrong so far....

J
KC is about facing the challenges it creates rather than accepting the problems it generates -
(C) Copyright 2005 KP

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Andrew MacLean
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Posts: 7703
Joined: Thu 15 Jan 2004 8:01 pm
Keratoconus: Yes, I have KC
Vision: Other
Location: Scotland

Postby Andrew MacLean » Tue 08 Aug 2006 11:05 am

Val

I was very nearly two years post graft before they let me wear glasses (until that time my refractions were too unstable). Do not lose heart! As Jay says your new cornea may well take up a more natural position as time goes by. In the meantime, I'd be encouraged by the possibility of a lens being fitted: they have still not allowed me to have one.

All the best

Andrew
Andrew MacLean

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GarethB
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Posts: 4916
Joined: Sat 21 Aug 2004 3:31 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: Warwickshire

Postby GarethB » Tue 08 Aug 2006 2:34 pm

My right eye post graft was too flat but probably no where as bad as yours as mine was corrected with glasses. Trouble is 20 years now it has gone from flat to bulgy and saggy!
Gareth

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Gareth2
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Posts: 48
Joined: Tue 11 Jul 2006 4:43 pm
Location: Wales

Postby Gareth2 » Wed 09 Aug 2006 12:08 pm

Hi Val.
you have a similar situation as myself with a cornea post graft that is to flat. but my contact lens consultent has mentioned a possible lens that is larger than my cornea to help bring eyesight up to a good standard. but she has not fitted one on a post graft patient before so depending what my graft consultent has to say in 2 weeks we may have some progress. just had a fresh rose K Lens on other eye and thats settled nicely so far. like being on a rollercoaster you just have to hold on in there with the ups and downs until the ride ends.


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