Keratoconus Corneal Transplant Followed by Astigmatism

[jayuk]

Troy

Can you not print this thread out and let him read it? Im sure many on here can relate to him and understand whats its like. I also think/thought that many dont understand what we go through...and in some respects that is correct....but when you have the support framework in place such as this site; it does help 10 fold........I hope he does decide to take a peek at this site or thread...

J

[John Smith]

Troy,

You're always very welcome here, but if your son wants to talk to someone more locally, perhaps you could find someone on the kc-link run by the NKCF, which is officially a global forum although seemingly one with a North American bent.

[Janet Manning]

Troy,
I'm sure you are doing a great job of supporting your son and one day he will realise this. Teenagers are notoriously ungrateful. I should know - I've had three of 'em. Fortunately they grow up and they've all acknowledged to me over various issues, the wisdom of my actions when they were teenagers e.g. making them pay their share of the humungus phone bill!!

It's a tough time, but it's clear from all the efforts you are making that you are thinking carefully and lovingly about your son's situation. He's having to deal with growing up AND KC all at once. It's very easy to feel sorry for yourself with constant sight problems. Hopefully once he has the new lenses he will regain some confidence and feel more positive.

Meantime you stay in touch with us and get whatever support you can.

[eitleog]

Thank you Jayuk, John and Janet for your wisdom, likely born of suffering. As you know, teenagers only give you a few windows when they are receptive to what we say. When the next windows present themselves and he is still feeling he is mostly on his own, I will remind him of these threads.

Thanks John for the suggestion on NKCF. I will see through their line whether there is someone physically closer.

Troy in Canuckland

[Andrew MacLean]

Troy

I am the father of two young adults. Both of them went through their teen years, but it wasn't so bad; I could remember my own teen years, and in comparison, I think my own children were pretty easy as compared to their dad!

Anyhow, all the best. don’t be a stranger to this forum, even if you do find another nearer to home! We are already a global community!

Yours aye

Andrew

[rosemary johnson]

Dear Troy,
Which city are you in>
maybe there are other Canadians on these fora...
DOes the clinic deal with lots of people with KC? - or lots of crneal tansplant people?
Maybe there is already a patients' group - or maybe if you ask them, they'd be happy for you to stick up a notice in the waiting room, say, asking if anyone else would like to get together to start a support group?

Patience is very hard message ..... but it does take a long time to get over operations.

Maybe your son wants tot hink what he's going through is particularly unique, and not to be told that "Oh, you're just the same as us!" Actually, even if he does meet others, on here or in a face-to-face support group, he'll probably find h is unique - KC can be soooo individual.
Understand what you're saying about parents....
Please don't underestimate his capacity for coping, and for toughness - however much he may get mad about the tough f'ing shit bad luck he feels that life has dealt him.
I hate hearing my mum talk to her friends about me ..... on the phone, for example,,,,, makes me sound like a poor, pathetic, helpless little... something or other.
Not true!!
I'm sur ethings will look up (errrm.... as it were.... as the stitches come out.
Rosemary