Put on waiting list for graft :-(

General forum for the UK Keratoconus and self-help group members.

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Anne B
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Posts: 754
Joined: Thu 15 Sep 2005 1:22 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and spectacles
Location: Hertfordshire

Postby Anne B » Wed 19 Jul 2006 11:09 am

Hi,

I had a little op with a local anaesthetic.
It was called a three snip and this meant they snipped my tear ducts in 3 places, to make them bigger.
Before i had it done i was pooing myself!!
I layed on the bed and they started snipping, I was squeezing the nurses hand like mad, and she said "does it hurt?" and i had to reply "No" :oops: :oops:. it did'nt hurt one little bit.
Don't know if that will help but it still makes me chuckle. :lol:

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James Colclough
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Joined: Mon 15 May 2006 4:14 pm
Location: Surrey

Postby James Colclough » Sun 23 Jul 2006 11:52 pm

No matter how anyone describes it does cause movement in the bowel end (Personal experience).

I have put on hold and am continuing with lenses until they say no more.

I have found that the advice contained on this site has me better informed. I never knew there was such a thing as good day bad day eye.

I thought that was just me.

Personally, I find that people are often unwilling to put forward suggestions. I never knew about scaleral lenses (probably spelt wrong) until last year. I have been wearing lenses for a long time. Piggy backs I only heard of this year through a chance remark at Kingston eye Hospital with my 14month old son who had cut his eye. I made the comment well let's hope he only inherits my blue eyes and no KC. I asked the consultant about grafts, it was at that time he mentioned piggy backs. I tried between 1 Feb and end of May to have a consult on the proposed op in June. I only had a consult in Mid May two weeks before the op, only at that time to convince myself not to have it. Only after speaking to Anne, I discovered more information. I take my hat off to those of you scheduled for the op. I am hoping to stay in the 5 / 10% who avoid surgery.

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GarethB
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Posts: 4916
Joined: Sat 21 Aug 2004 3:31 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: Warwickshire

Postby GarethB » Mon 24 Jul 2006 8:54 am

James,

I think consultants tread a fine line between putting us at ease and scaring the whatsist out of us.

A simple suggestion if phrased wrong can sound quite horrfic which is why I think some concentrate more on what they know such as RGP lenses. Some are ignorant of alternatives, others due to lack of experince in the other solutions shy away from suggesting them.

Perhaps a fear of causing the patient more distress.
Gareth

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John Smith
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Posts: 1942
Joined: Thu 08 Jan 2004 12:48 am
Keratoconus: Yes, I have KC
Vision: Graft(s) and spectacles
Location: Sidcup, Kent

Postby John Smith » Mon 24 Jul 2006 9:20 am

Just to put people's minds at rest (especially James!)

The received wisdom is that 5-10% of KCers will require surgery... so there is a 90-95% probability that someone with KC will stay off the operating table permanently.
John

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James Colclough
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Posts: 79
Joined: Mon 15 May 2006 4:14 pm
Location: Surrey

Postby James Colclough » Tue 25 Jul 2006 9:34 pm

Now as accountant they are the type of stats I like.

Cheers.

Oh PS

Gareth I agree with your comments but people should never be afraid to express an opinion or give advice. At the end of the day it is down to the individual what path he takes.

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Andrew MacLean
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Posts: 7703
Joined: Thu 15 Jan 2004 8:01 pm
Keratoconus: Yes, I have KC
Vision: Other
Location: Scotland

Postby Andrew MacLean » Sat 29 Jul 2006 6:56 pm

I concur!

I think at one time there was a question about whether stitches came out under local or general anesthetic. I had mine in under general and out under local (eight at a time). I was very nervous about this, but actually it was fine.

I am quite nosey, and found all the talk in the theatre interesting. They played music (chosent to suit the taste of the theatre staff rather than the man on the table, but not too bad for all that!)

all the best

Andrew
Andrew MacLean


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