Too many steroids?

General forum for the UK Keratoconus and self-help group members.

Click on the forum name, General Discussion Forum, above.

Moderators: Anne Klepacz, John Smith, Sweet

User avatar
GarethB
Ambassador
Ambassador
Posts: 4916
Joined: Sat 21 Aug 2004 3:31 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: Warwickshire

Postby GarethB » Fri 19 May 2006 8:49 pm

Dry Powder Inhalers are limited by the number of blisters they can get in a small strip that is coiled up.

The presurised ones range from 30 to 120 doses but doctors are concenrned there is no indication to the patient og how many doses have been taken out. Everyone is working on a counting system that effectively prevents the inhaler working once it gets to its designated limit. Propellant may be left so the patient thinks drug is left when there is not any. Not what you wnat in a major attack!

There are quite a few dry powder in halers which you can get in pressurised form so if you are on them long term, these might be worth investigating.

Sure you have already checked the patient leaflet, assuming you can get the print enlarged enough as the technuque for using a dry powder is very differnet to the presurised unit.
Gareth

User avatar
Sweet
Committee
Committee
Posts: 2240
Joined: Sun 10 Apr 2005 11:22 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: London / South Wales

Postby Sweet » Fri 19 May 2006 11:47 pm

Gee do they still make those?!! That was one of the first inhalers i ever had as a child and we never see them in hospital anymore. From what i remember of them they don't taste very nice either!

Sweet X x X
Sweet X x X

Image

User avatar
GarethB
Ambassador
Ambassador
Posts: 4916
Joined: Sat 21 Aug 2004 3:31 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: Warwickshire

Postby GarethB » Sat 20 May 2006 7:33 am

Dry powders more a preventative as they rely on the patient being able to breath properly. Pressurised units, as long as you can breath in help push the medicine down where it is needed.
Gareth

User avatar
John Smith
Moderator
Moderator
Posts: 1942
Joined: Thu 08 Jan 2004 12:48 am
Keratoconus: Yes, I have KC
Vision: Graft(s) and spectacles
Location: Sidcup, Kent

Update

Postby John Smith » Fri 16 Jun 2006 7:38 pm

Update:

Saw my consultant yesterday. She'd had me come off the Iopidine drops on Monday (but stay on the FML and Xalatan). Pressure in the grafted eye had increased to 24, but she wasn't too concerned. So she's leaving me on the current medication...

...and given the OK to proceed with getting the other eye DALKed.

Of course, here's the rub: for months now I've been wanting something to happen, and the moment it starts getting in arms reach, trepidation starts to set in again :roll:.

Still, I'll make the call on Monday, and the "new" surgeon will probably want to do another check before scheduling me in for a graft.

More updates to follow as-and-when.
John

User avatar
Andrew MacLean
Moderator
Moderator
Posts: 7703
Joined: Thu 15 Jan 2004 8:01 pm
Keratoconus: Yes, I have KC
Vision: Other
Location: Scotland

Re: Update

Postby Andrew MacLean » Sat 17 Jun 2006 1:17 pm

John Smith wrote:Update:
...and given the OK to proceed with getting the other eye DALKed.

Of course, here's the rub: for months now I've been wanting something to happen, and the moment it starts getting in arms reach, trepidation starts to set in again :roll:.

.


The race is oind. will John get his DALK before Andrew or will Andrew having left the starting block six months before John mean that he reaches the goal first.

It doesn't meatter. All the besdt John. I'm overawed by the prospect of surgery, too. Still afterwards it will be good to have it done.

All the best.

Andrew
Andrew MacLean

User avatar
John Smith
Moderator
Moderator
Posts: 1942
Joined: Thu 08 Jan 2004 12:48 am
Keratoconus: Yes, I have KC
Vision: Graft(s) and spectacles
Location: Sidcup, Kent

Postby John Smith » Sat 17 Jun 2006 3:29 pm

Thanks Andrew, best wishes to you, too. Do you have a date yet?
John

User avatar
Sweet
Committee
Committee
Posts: 2240
Joined: Sun 10 Apr 2005 11:22 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: London / South Wales

Postby Sweet » Sat 17 Jun 2006 4:28 pm

Wishing you all the best, hope you both get a date for the graft soon!

Sweet X x X
Sweet X x X

Image

User avatar
jayuk
Ambassador
Ambassador
Posts: 2148
Joined: Sun 21 Mar 2004 1:50 pm
Location: London / Manchester / Cheshire

Postby jayuk » Sat 17 Jun 2006 5:22 pm

Add me to the race!

I got my date through yesterday so looks like well all have our own experiences to tell!! All being DALKED!!

J
KC is about facing the challenges it creates rather than accepting the problems it generates -
(C) Copyright 2005 KP

User avatar
John Smith
Moderator
Moderator
Posts: 1942
Joined: Thu 08 Jan 2004 12:48 am
Keratoconus: Yes, I have KC
Vision: Graft(s) and spectacles
Location: Sidcup, Kent

Postby John Smith » Sat 17 Jun 2006 5:25 pm

Wow - three of us now! Best of luck too, Jay. Are you having your DALK done at C4S again? When are you having it done?
John

User avatar
jayuk
Ambassador
Ambassador
Posts: 2148
Joined: Sun 21 Mar 2004 1:50 pm
Location: London / Manchester / Cheshire

Postby jayuk » Sat 17 Jun 2006 5:31 pm

John

Yes, C4S.....I WAS going to have it done next week!.However, due to my pending move being brought forward on Wednesday, work commitements, and a family wedding, I decided now to have it in T minus 11 weeks!. I have a choice beg of September or End of September.

Just hope it goes well!! Hopefully Ill have a better immediate post op experience than last time!

I am quite confident that Ill be able to get
back to work within 7 days post op this time based on the conversations I have been having with my consultant. But you never know!!

Jay
KC is about facing the challenges it creates rather than accepting the problems it generates -

(C) Copyright 2005 KP


Return to “General Discussion Forum”

Who is online

Users browsing this forum: No registered users and 32 guests