hello

[lou]

Oh My God (Stokie)

Your eyes sound just like mine in everyway so far i used to be able to squint really hard and push my cornea's together and get ok vision.

read my post about my pre-op i call my lenses soup bowls

Its abit of a mad condition KC all my mates call me 'MAD EYES' some people wouldnt believe that without my lenses im registered p/sighted and need help getting around and putting my 'slap' on etc yet with them i could see great.

And i was forever messin with my lenses i would spin them to release the suction.
Do yours get stuck on your eyes?

luv

Emma xxx

[stokie]

yes yes and yes

and yes again

without lenses i cant see nothing unless i squint ect

with lenses i can see brillaint its just the awkwardness of having them in

does your have a little red dot on them ? i make sure thats at the bottom of the eye and yeah my eyes get dry at times

i think im clenaing them wrong mind

what i do is wash them when i take them out with bottled water then put the solution on the lens before im putting it in my eye?is that right?

[clare f]

i think im clenaing them wrong mind

what i do is wash them when i take them out with bottled water then put the solution on the lens before im putting it in my eye?is that right?[/quote]


bottled water?? is that saline yeh? not like evian?sori 4 being blond here if i am!lol wot i'v always been told take lenses out put cleaner on rubb then wash off with saline then yeh u put them in the case with the conditioning solution and yeh u can put this on b4 u put them in

[lou]

Hi luv

Do you have a cleaning solution?

if so clean them with that and make sure its all rinsed off.

i dont use a cleaning solution as im allergic to them so i clean my eyes (lenses) in saline solution then fill them to the top with saline then put them in (hope that makes sense)

yeh my left eye has a dot on it that i can feel so i know which eye to put it in how you are ment to see it is beyond me.

another tip if your eyes get dry take them out and re-fill them i spend all my time doing this
its a pain in the ass but it helps

luv

Emma xxx

[stokie]

usnure,i was told to wash them with bottled water? and put them in the solution

im getting abit nervous now as ive seen people syain there lenses were brillaint untill they were unable to use them?? whats that all about do the eyes get worse?

[Andrew MacLean]

With my scleral I usd to wash it out with Total, and rinse with bottled saline. I stored the lens dry.

When it was time to put it in, I'd rinse again with bottled saline and then fill it to the very brim with saline before working it into my eye.

Andrew

[mike scott]

hi stokie
welcome to the forum
KC is one of natures little cruelties andone that unfortunately wont go away. the challenge is to find the best way of living with it to attain the best quality of life that you can, sometimes that can be difficult. unfortunately it can also mean making sacrifices but i've personally found that as one door closes another opens. i was diagnosed 22 yrs ago at the age of 18 and my sport was cycling. i had a very real chance of competing in the tour de france and had to let it go when i was diagnosed, cycling at high speed in the mountains was a bit dangerous with poor sight .

a graft is a last resort.
it is a donor organ that is stitched into your own eye and takes a very long time to recover. when recovered your eye will still be weeker than your own original cornea, if you recieve any knocks it could do untold damage.
as a donor organ you will need to take very good care of it to keep it, ie not overworking it , taking the anti rejection drugs religiously for as long as you need to and keeping all your eye care appointments.

i'm not trying to put you off having a graft but pointing out that it isnt neccasarily a quick fix, and it it would be highly likely that you would still need some form of eye correction.
i appreciate that your present lens situation poses difficulties for you however a graft would also pose difficulties, just a different set.
it took me a long time to accept KC and its still hard today but at all costs persevere with your lenses for as long as you can rather than opt for a graft before exhausting all the other solutions.
if i could i would wear lenses for the rest of my life rather than have to have my graft.

if you really want to talk to somebody on msn then i would consider doing that if i could help in anyway, but please take note of all the people on here as there is so much warm and true good friendly advice.
my advice to you would be to look at your cup as half full and to consider yourself as being a special person with a pretty unique condition and can hold your own in a world full of "normal"people on an equal footing.

keep on going

mike

[stokie]

hi stokie
welcome to the forum
KC is one of natures little cruelties andone that unfortunately wont go away. the challenge is to find the best way of living with it to attain the best quality of life that you can, sometimes that can be difficult. unfortunately it can also mean making sacrifices but i've personally found that as one door closes another opens. i was diagnosed 22 yrs ago at the age of 18 and my sport was cycling. i had a very real chance of competing in the tour de france and had to let it go when i was diagnosed, cycling at high speed in the mountains was a bit dangerous with poor sight .

a graft is a last resort.
it is a donor organ that is stitched into your own eye and takes a very long time to recover. when recovered your eye will still be weeker than your own original cornea, if you recieve any knocks it could do untold damage.
as a donor organ you will need to take very good care of it to keep it, ie not overworking it , taking the anti rejection drugs religiously for as long as you need to and keeping all your eye care appointments.

i'm not trying to put you off having a graft but pointing out that it isnt neccasarily a quick fix, and it it would be highly likely that you would still need some form of eye correction.
i appreciate that your present lens situation poses difficulties for you however a graft would also pose difficulties, just a different set.
it took me a long time to accept KC and its still hard today but at all costs persevere with your lenses for as long as you can rather than opt for a graft before exhausting all the other solutions.
if i could i would wear lenses for the rest of my life rather than have to have my graft.

if you really want to talk to somebody on msn then i would consider doing that if i could help in anyway, but please take note of all the people on here as there is so much warm and true good friendly advice.
my advice to you would be to look at your cup as half full and to consider yourself as being a special person with a pretty unique condition and can hold your own in a world full of "normal"people on an equal footing.

keep on going

mike

cheers for that fella,ive took your advice and im going to stick with the lenses so i can do things at an early age what i wouldnt be able to do if i had a graft,one last thing is it a fact that some stage in my life the lenses wont work anymore and i will have to have a graft?

[Raj Sandhu]

Hi,

Am new to the forum also.

I wear the big lens as well (sclerals)and too be honest find it easier to play football in these than when I wore the smaller gas permeable ones - as they kept popping out.

If you get a graft, you can kiss football goodbye for at least 18 months (per eye) as I've been told you have to be very careful after the op.

If you are getting good vision I would persevere with the lens. Its always difficult to wear any type of lens in the begining, but as you build up your tolerance -it gets easier.

[Andrew MacLean]

Raj

Welcome to the forum. I agree that Sclerals are far more comfortable than the little RGP corneals.

All the best

Andrew