How Weird is this?

General forum for the UK Keratoconus and self-help group members.

Click on the forum name, General Discussion Forum, above.

Moderators: Anne Klepacz, John Smith, Sweet

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Michael P
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Joined: Mon 30 May 2005 10:34 am
Keratoconus: Yes, I have KC
Vision: Contact lenses
Location: London

Postby Michael P » Thu 17 May 2007 5:29 pm

Pat A wrote:Michael
Sounds like you are in the same baot as me then for distance and reading. (Is that OK - not too technical!)



Err I think so, but what is a "baot" :wink: .

Piper and Pat

I am sorry that you have both had problems with your cataract operations.

Piper, hopefully once your graft has settled down a way will be found to enable you to read. If you need to wear a lens then presumably they will be able to fit you with suitable reading glasses.

Let us know how you get on with your eleven optometrists! Good luck.

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Pat A
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Joined: Fri 08 Dec 2006 9:42 pm
Keratoconus: No, I don't suffer from KC
Vision: Contact lenses
Location: Herts

Postby Pat A » Thu 17 May 2007 9:10 pm

.........BAOT = British association of Occupational Therapists

:twisted:
Pat

We do not stop playing because we grow old;
We grow old because we stop playing.

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piper
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Joined: Wed 25 Oct 2006 2:15 am
Location: Southeastern Louisiana USA

Postby piper » Sun 20 May 2007 12:30 pm

BAOT.......Back Alley On Thames.......Brown And Olive Turtleneck.....must be a million more.

Glad to see a bit of lighthearted humor here at times as we are all involved with the heavy duty issues of survival with KC.

Piper

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Andrew MacLean
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Posts: 7703
Joined: Thu 15 Jan 2004 8:01 pm
Keratoconus: Yes, I have KC
Vision: Other
Location: Scotland

Postby Andrew MacLean » Sun 20 May 2007 4:39 pm

... Behind Another Oregon Trailler ...
Andrew MacLean

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Michael P
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Posts: 836
Joined: Mon 30 May 2005 10:34 am
Keratoconus: Yes, I have KC
Vision: Contact lenses
Location: London

Postby Michael P » Sun 20 May 2007 10:06 pm

British Airways On Time.

I think we are destined for the Non KC Chit Chat section! :lol:

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rosemary johnson
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Joined: Tue 19 Oct 2004 8:42 pm
Keratoconus: Yes, I have KC
Vision: Contact lenses
Location: East London, UK

Postby rosemary johnson » Mon 28 May 2007 7:29 pm

Don't now much about cataracts, sorry .... other than that I've heard other peple saying the same as Piper; lso that there is a default" amongst the medical staff to fit "distance2 vision new intraocular lenses which may not be the best option for people who do a lot of close work, eg with computers.

What I do know about is close contact and the vision/comfort/"ideal fit" trade off!
Back in the days of PMMA (Perspex) lenses, I ugot my early one with huge great contact zones - I'm talking sclerals here - that apparently wnet against all the text books and the advice on fitting. But I could see well out of them like that. When I moved to London, it took ages for MEH to come tot he conclusion that I was right and it was better to make bigger contact zones and get better vision like that.
With the Rgp materials, they have a different "microtexture" so the large contact zones are not so feasible as the rougher texture makes for poor tolerance. SO where did that leave us? - answer: piggybacking! The hard, scleral, lens fits with a large contact which gives better vision in the eye than I'd had for ages, and the soft lens under deals with the discomfort of close fitting RGP textures.

HOwever, the vision isn't all that hot, which apparently is the state of advancement of the KC, and MEh are now offering me grafts. And atelling me I'm commendably blood-vessel encroachment free!

Incidentally, MEH, and I gather they aren't the only ones, use fitting sets made of tPMMA when they are trying out different sizes/shapes of lenses to see which fits best, and then makes "your" one out of RGP materials. SO iis it possiblel your "rogue" good eye test came with a PMMA fitting tset trial lens and the vision couldn't be repeated because "the" lesn was RGP and not tolerated in that shape made of that material??
Incidentally, I'm not clear wheter the lenses you are getting are the smaller corneal ones, or sclerals? (II presume either made of RGP) - or a partially-hard=part soft type of lens?

If your experience is based on corneal lenses, you might find sclerals a help. Or else piggybacking.
Rosemary

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Michael P
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Posts: 836
Joined: Mon 30 May 2005 10:34 am
Keratoconus: Yes, I have KC
Vision: Contact lenses
Location: London

Postby Michael P » Thu 31 May 2007 7:32 pm

Rosemary

I have always had RGP's and the ones supplied for my right eye, apart from the last one which was medium sized, have been quite small.

If I am still having a problem when my latest lens arrives, I will raise the question about sclerals although I was advised against them on a visit to MEH prior to my cataract op. Piggybacking for this eye has not been suggested.

Piggybacking was only suggested for my left eye but as the vision is likely to be poorer, this is an option I would like to avoid unless I am told on my next visit to MEH that the degree of contact with the centre of my cornea makes this desirable. It feels reasonably comfortable so hopefully this won't be a problem.


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