Hi there
i am new to this forum and would like some advice, i am 27 and have had KC since i was 21, i am managing well using a RGP lens in my good eye, abit weird but seems to give me good vision, my right eye is my good eye and generally vision is fairy good without a contact in this eye, my left eye is very bad, i struggle to see anything with this eye, i am awaiting a contact fitting appointment for a new lens in my left eye. I have a consultation with the midland eye clinic in October for cross linking, can anyone provide any advice? i currently work in HR and rely on my good eye to see, if i was to have cross linking how long would i be out of action etc for and is cross linking worth doing?
Thanks
Advice
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kieran19685
- Regular contributor

- Posts: 146
- Joined: Mon 03 Sep 2012 11:50 am
- Vision: Contact lenses
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dalbeath
- Regular contributor

- Posts: 104
- Joined: Thu 06 Jan 2011 3:01 pm
- Keratoconus: Yes, I have KC
- Vision: Contact lenses
- Location: Fife
- Contact:
Re: Advice
Can give you general advice but I can share my own experience with you.
I had my right eye CXL about 14 months ago. Was no use to anyone for about 3 days as in a bit of pain and very sensitive to light. Went back to working day 4, vision was back to where it had been pre CXL by about 3 weeks and started wearing lenses again in about a month. Now vision is a little better than pre CXL but it seems to have definitely stabilised my KC which was progressing very quickly.
If my other eye was suitable I would have CXL done on it too but unfortunately the cornea is too thin.
Hope this help?
I had my right eye CXL about 14 months ago. Was no use to anyone for about 3 days as in a bit of pain and very sensitive to light. Went back to working day 4, vision was back to where it had been pre CXL by about 3 weeks and started wearing lenses again in about a month. Now vision is a little better than pre CXL but it seems to have definitely stabilised my KC which was progressing very quickly.
If my other eye was suitable I would have CXL done on it too but unfortunately the cornea is too thin.
Hope this help?
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kieran19685
- Regular contributor

- Posts: 146
- Joined: Mon 03 Sep 2012 11:50 am
- Vision: Contact lenses
Re: Advice
Thanks or the reply, did you go back to wearing rgp lens or soft lens?
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dalbeath
- Regular contributor

- Posts: 104
- Joined: Thu 06 Jan 2011 3:01 pm
- Keratoconus: Yes, I have KC
- Vision: Contact lenses
- Location: Fife
- Contact:
Re: Advice
Both .. I wear a soft lens for 80% (driving, working, normal life) of the time and then a piggy back for 20% (only when I am training or competing and need super good vision)
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