how to protect my eye affected by KC?

[neoark]

Hello,

I'm Neo, I just discover I have KC in my right eye, and the foregin doctor didn't explain anything except, it's danger to do lisak surgery.

I read about contact lens and specs, but the real question is, if i used an eye patch, not using my KC eye, would that be helpful? what about a sumglasses, or certain way to keep it protected.

as for contact lens or specs, is there certain type good for KC affected eye.

is it true that if I did transplant for cornea, it won't stop the KC?

what is keratonconus?

what danger do i get from making lisak eye surgery?

how we get infect by keratonconus?

if my affected eye hurts, which stage is that?


is the TV or computer affect it? how about the sun? and lights?

thanks in advance,
Neo

[rosemary johnson]

Hello Neo, and welcme to the group.
SOrry to hear you've just found you have KC.
No, wearing an eyepatch and not using your KC eye won't help it.
If you find the light outdoors feels bright, then please do wear sunglasses - in fact on sunny days, dark glasses won't ever hurt.
Similarly, if you find you are sitting close to the computer screen or TV and the light feels uncomfortably bright, then do turn down the brightness, move further back, take more breaks.....

You don't get infected" with KC - you can't catch it from someone and they won't catch it from you. SO far as the latest scientific thinking knows! It is generally thought that it is genetically linked - that is, you can inherit from your parent(s) the risk of developing it. It then takes something to make it start - not everyone with the gene has KC - but it is not yet known what all the possible triggers are.
There are research projects still going on looking into this.
As regards contact lenses, there are now several different sorts available. If you need them, please ask about the range of possibilities where you are.
SOme people say you should avoid rubbing your eyes, even if they do feel tired, dry or itchy, and think that may be one of the triggers to KC developing. Other people are not so convinced.
KC is the result of the body's metabolism not maintaining and repairing the cornea properly, so it becomes thin, flabby and misshapen. If this is not too extreme, you can correct it with ordinary glasses or contact lenses. If it gets more advanced - which does not happen to all people with KC - there are different types of contact lenses, and combinations of lenses. There are newer treatments like CXL and intacs. Ultimately, there is the option of a corneal graft (transplant). This replaces the thin flabby and mis-shaped part of your cornea with one from a healthy eye of someone who died. In most cases, that removes the KC from the grafted eye - though very occasionally the KC does come back. However, most people who have grafts still end up wearing either glasses or contact lenses to correct the vision, as the shape of the eye after being cut open and a new piece sewn is is not going to be perfect for everyone!

If an eye with KC hurts - well, that could be any number of things - inclding hay fever, allergies to something in the environment (anything from paint fumes to animals to contact lens solutions), keeping contact lenses in too long, wearing contact lenses when you have a cold/flu/hangover, hydrops, getting an eyelash stuck under the contact lens, a transplant rejecting..... etc. It could also be a "behind-the-eye" headache because your brain is struggling to cope with blurred vision.
If you arehaving problems with your eye hurting, please gt it checked out by the doctors/optometrists - we can't see your eye here.
Hpe this helps. There is mor info on many of these topics accessible from the home page of this site.
THe problem with Lasik surgery is that it will not work! - it is trying to cure a different problem from the one you have. It might also make the KC worse. As I understand it, the laser surgery aims to compensate people whose "ordinary" short-sightedness is caused by their eyeballs being too long, because the back of their eye is slightly too deep inside their heads. It shaves a thin slice of the cornea away so that the eye is now the overall correct length. However, for someone with KC, their short-sightedness is not caused by the back of the eyeball being too far away, but by the cornea on the front being too thin, flabby and mis-shapen. SO shaving away a bit more of it won't help, and will only make it even more thin, and risk it become even more flabby and misshapen.
If you see what I mean!
Rosemary

[Andrew MacLean]

neoark

Welcome to the forum; how have things been since your first post?

Andrew