slightly anxious

General forum for the UK Keratoconus and self-help group members.

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Moderators: Anne Klepacz, John Smith, Sweet

Loopy-Lou
Forum Stalwart
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Posts: 578
Joined: Mon 20 Apr 2009 9:04 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses

Re: slightly anxious

Postby Loopy-Lou » Tue 27 May 2014 10:26 am

well good for you

Loopy-Lou
Forum Stalwart
Forum Stalwart
Posts: 578
Joined: Mon 20 Apr 2009 9:04 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses

Re: slightly anxious

Postby Loopy-Lou » Wed 04 Jun 2014 3:51 pm

tear production a bit dry so trying out different lubricants - would appreciate any recommendations from RGP wearers please, tell me what's worked for you.

Those of us with old grafts (over 20 - 25 yrs) - there are not many people with 50 yr old grafts and we have a 17% survival rate. They can in the event of graft failure do a lesser procedure stripping out the endothelial layer and just replace that bit (hence no sutures) which yields results relatively quickly BUT it hasn't been going for that long, only about 10 yrs and the survival rate of that is 50% (PK 53%). The only question I forgot to ask and if anyone here knows please do say - if you've experienced graft failure (not rejection) does all sight go?

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Andrew MacLean
Moderator
Moderator
Posts: 7703
Joined: Thu 15 Jan 2004 8:01 pm
Keratoconus: Yes, I have KC
Vision: Other
Location: Scotland

Re: slightly anxious

Postby Andrew MacLean » Wed 04 Jun 2014 4:25 pm

I use Clinitas Soothe, and have done more or less since it came on the market. It suits me. I get in online.
Andrew MacLean

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Anne Klepacz
Committee
Committee
Posts: 2300
Joined: Sat 20 Mar 2004 5:46 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses

Re: slightly anxious

Postby Anne Klepacz » Thu 05 Jun 2014 1:20 pm

I've just had a couple of bad days since I started on Hylo Tears, so that's a big improvement. I'm keeping my fingers crossed. I'm not sure, but I think they're only available on prescription. Drops seem to be like lenses - what works for one person isn't necessarily the best for someone else.
Anne

Loopy-Lou
Forum Stalwart
Forum Stalwart
Posts: 578
Joined: Mon 20 Apr 2009 9:04 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses

Re: slightly anxious

Postby Loopy-Lou » Thu 05 Jun 2014 1:26 pm

I'm trying that one right now Anne, also have Optive and Systane to try out, yes our GP's can prescribe these.


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