Just diagnosed

General forum for the UK Keratoconus and self-help group members.

Click on the forum name, General Discussion Forum, above.

Moderators: Anne Klepacz, John Smith, Sweet

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Matthew_
Champion
Champion
Posts: 814
Joined: Thu 13 Jul 2006 3:13 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses
Location: Gallafrey

Postby Matthew_ » Mon 20 Nov 2006 1:51 pm

Hi,
No technical stuff to add but good luck. It can take quite some time from diagnosis to finding the right solution and being able to get on with life. But you will get there and the the adjustment will be made. While you are in that no-man's land of referrals and waiting for treatment take heart in knowing that soon enough you will be able to see so much clearer again, hopefully that will see you through the frustration.
Good luck!
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Get a life...get a dog!

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debbieo
Contributor
Contributor
Posts: 17
Joined: Sun 19 Nov 2006 9:33 pm
Location: Staines

Postby debbieo » Tue 20 Mar 2007 9:45 pm

Update from me: I've now been to the local eye hospital and referred to a lovely local optician and am setting out down the road with RGP lenses.

I'm amazed - I tried soft lenses about 7 years ago - couldn't get on with them at all - found them really uncomfortable and the vision was appaling. I thought I f I couldn't tolerate soft then I shouldn't even think about hard.

But thanks to my wonderful optician I'm getting along pretty okay with my new lenses - wearing them for 8 hours most days. I can't say they are 100% comfortable - that would be too much to ask. But it's amazing how much that doesn't matter given the wonderful vision I have with them - better even than my glasses and that wasn't bad.

I feel like a new woman.......

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John Smith
Moderator
Moderator
Posts: 1942
Joined: Thu 08 Jan 2004 12:48 am
Keratoconus: Yes, I have KC
Vision: Graft(s) and spectacles
Location: Sidcup, Kent

Postby John Smith » Tue 20 Mar 2007 9:57 pm

Hi Debbie,

I'm glad you're getting on so well with your new optician.

Can you please consider adding them to the "recommended opticians" list on the members-only site?

Thanks,
John

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debbieo
Contributor
Contributor
Posts: 17
Joined: Sun 19 Nov 2006 9:33 pm
Location: Staines

Postby debbieo » Tue 20 Mar 2007 10:13 pm

Will do - please can you let me have the password....

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Andrew MacLean
Moderator
Moderator
Posts: 7703
Joined: Thu 15 Jan 2004 8:01 pm
Keratoconus: Yes, I have KC
Vision: Other
Location: Scotland

Postby Andrew MacLean » Wed 21 Mar 2007 7:08 am

debbieo

That is really good news. the right lenses are always going to be more comforable than the wrong ones!

Andrew
Andrew MacLean


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