UK Keratoconus Self-Help and Support Association

Hi everyone! I am new to this forum and was told by bham eye centre about this today although i am old to KC! I had KC in my left eye when i was 15 and was diagnosed it in my right eye a few years ago! Im 26 now! I had colleges cross linking in my right eye as soon i was diagnosed it. My left eye is aparently to the stage it can have a graft...... But im really anxious about this and dont know whether i should wait..... My vision is brilliant with Hard Cl in both eyes but i know my right eye is doing all the work! Any advice?! Dont know whether i should go for grafting or wait i was told t left eye it has the stage due to scaring that i can now get an assessment and put on waiting list! Im just really scared of hospitals and ops! Xx

Hi Nelzkhan and welcome to the forum,
Lots of us here grapple with that decision, and come to different conclusions - it's our eyes and we have to do what feels right for us!
We had a good talk from a London consultant at one of our conferences a few years ago on the pros and cons of surgery. If you e-mail your postal address to anne@keratoconus-group.org.uk I can send you the DVD which might help you to think it through.
All the best
Anne

Aww thank you Anne i will do that now!

Hi Nelzkhan, lovely to have you here.

It is hard when deciding about having a graft, it's good to read up on it so that you feel more prepared and able to decide what you want. I definitely didn't want to have surgery, but in the end I wasn't able to wear a lens in my good eye because of an ulcer so decided to go for it with the other eye. I had nothing to lose because my bad eye could only see a light box and no letters!

Read loads here from friends who have been through deciding on surgery and go from there.

I am going to move this post though to the General discussions forum as more people will see it! Hoping that is ok?

Love Claire Xxx