My experience with CXL

General forum for the UK Keratoconus and self-help group members.

Click on the forum name, General Discussion Forum, above.

Moderators: Anne Klepacz, John Smith, Sweet

paull
Newbie
Newbie
Posts: 1
Joined: Mon 10 Dec 2012 11:55 am
Keratoconus: Yes, I have KC
Vision: Other

My experience with CXL

Postby paull » Mon 10 Dec 2012 12:20 pm

My story is pretty much the same as most. I've been wearing glasses since I was 5 (40 now), had a -4.5 with a 90degree astigmatism in both eyes and work with computers all day. Last year, a regular trip to an independant optician highlighted KC where the V*****xpress high street store had missed for 4 years running. After a trip to the local NHS, where they hmmed and harred a lot before saying "we cant look at the cornea today as the doctor that uses that machine is on holiday, come back later with your records"

I contacted optical express, who bought out the company that did my lasik 12 years ago, and obtained a copy of my pre and post op perscriptions. By this time my right eye had gone from -4.5, down to -2 with the lasik and was now -6 due to the KC. Optical Express talked to me about how they could help and I bit the bullet and agreed to CXL in just the one eye.

its been 6 days since my operation and the pain has all but gone but my vision is very blurry and about 20/200, worse than I expected as its degraded on what it was a week ago. Fingers crossed that it all settles down and returns to what it was quickly.

I still havent heard back from the local NHS with a new appoiintment time to have my eye scanned and it makes me wonder why I pay so much damned tax when given such treatment. I think the A&E staff deserve nighthoods but the admin side of non-A&E seems to be woeful at best. Its been 4 months since I last heard from them, as they pushed me out the door after my first and only visit.

User avatar
Anne Klepacz
Committee
Committee
Posts: 2300
Joined: Sat 20 Mar 2004 5:46 pm
Keratoconus: Yes, I have KC
Vision: Graft(s) and contact lenses

Re: My experience with CXL

Postby Anne Klepacz » Mon 10 Dec 2012 2:16 pm

Hi Paull and welcome to the forum.
All the best with your CXL recovery. As for your NHS appointment, have you tried contacting the hospital to check that your referral hasn't fallen into a black hole?
Anne


Return to “General Discussion Forum”

Who is online

Users browsing this forum: No registered users and 19 guests