UK Keratoconus Self-Help and Support Association

Anyone with mild keratoconus?

Symptoms please...this would help to understand mine!

Depends how mild, I have one really bad eye and one eye that is ok but I can read the second bottom line on the chart with lens, if it's reall mild you may only need glasses, symptoms are blurry vision, headaches, and some sensitivity to lights

I have mild to moderate.

There's not much to really understand about it.

Its a non-curable, non-reversible condition that can only get progressively worse. It can stop at anytime, and can also start-stop, start-stop.

Glasses can correct very mild KC. If glasses don't help, then we move on to contact lenses. If it gets to a stage where contact lenses can't help, you may need both glasses and contact lenses. If all fails then there's the corneal transplant.

There are new techniques and procedures that can help to slow KC progression, or make contact lens fitting/glasses better. But NOTHING will reverse the condition and make our eyes work.

As KC is unique to each of us, then there's no right solution for everyone. What works for one might not work for another. Its all trial and error.
Also, everyone has individual symptoms, eg, different headaches, light sensitivity and visual distortions.

All the consultants can do is give us the best vision we can achieve with the tools available.

I hope that helps.

True that.

My symptoms are not curable anymore although my eye has the power of +0.75. I have ghosting, glaring, blurring is going and coming back, night vision is poor like everything seems gloomy.

Hope these will be resuced once I receive my lens!

Mild / Moderate / Sever are all relative terms used by medical practitioners and in my opinion when it comes to the patient completly meaningless.

I have come across people who have been told their KC is mild but their optom is unable to find a lens that gives them decent vision while another with more sever KC can get decent vision with lenses. It also depends in what orientation the KC is on the cornea and how well a person can manage with the aberations KC causes.

KC affecting the central cornea can be easier to correct with lenses compared to KC affecting a more off centre part of the cornea which requires more complex lens designs, but clinically both cases would be considered mild.

A person with KC affecting the centre of the cornea might find it harder to see without lenses compared to someone with KC that is off centre because the 'central visual zone' is less affected so more normal.

This is why on this forum you will see many people describe KC as a bespoke condition because it follows no rules.

Yes mine is off centered. Its lying down to the mid zone. That's why I see ghosting only in that direction at the moment.

You are right that I can see without the aid of lenses compromising the clarity except the far objects which get really blurred.

My KC is just south/below the pupil centre in both eyes.

What symptoms to do you have then?

Thanks.