UK Keratoconus Self-Help and Support Association

Ok, i am seeing an optician this friday. In my right eye I had a transplant done ten years ago which i can have .7 corrected vision with spectacles (glasses).
On my other in which i still batteling KC I just found that my "cone shape" in my left eye is somehow located in the bottom of the eye and not in the center of it. And optician told me this and this is also why I could see as good as 0.6 with spectacles before CXL ruined that eye for me.

I have two questions.. Does the location of the cone shape make it more difficult for me to wear a lens in a comfortable way? Which lenses are the best option for this kind of issues? Also which lenses are the best option to wear in my grafted eye? Is it usual to need a lens in a grafted eye and can it be worn more comfortable?

I was told I had a lower cone at Bristol Eye Hospital. The doctor there went as far as to say I actually had Pellucid Marginal Degeneration rather than KC (though a private doctor disputed that). I was also told that the centre of my eye being relatively unaffected was why I've always managed quite well with glasses.

I've never had issues wearing lenses, and have had a lot of success with a piggyback system.

Hi Grim,
From what we've been told at various talks from the professionals, KC cones come in various shapes and sizes and low cones are pretty common. So any optometrist experienced in fitting KC eyes should not have a problem finding you a suitable lens. It's also very common to need correction with contact lenses on a grafted eye (an important point to remember for those people who think a graft is a way out of wearing contact lenses). I've certainly found contact lenses much more comfortable since my grafts with much increased wear time.
Good luck
Anne

Anne makes a very good point and infact can be expanded.

Any surgery (e.g. graft or intacs) on a KC eye predominantly has the aim of making the cornea surface more regular to improve vision correction which can be with either contact lenses or glasses.

It is because of the more "regular / normal" corneal shape that lenses are often more comfortable post surgery however in some cases people do have more sensitive corneas so lenses are just as uncomfortable.

Unfortuntly there isn't a one solution fits all for us.

My cornea damage is just south of the centre of the pupil on both eyes.

Hence why the smearing/ghosting gets worse as the light dims. Night time is the worst.

In daylight, the iris manages to cover most of the damaged cornea as it limits light entering the pupil. As the iris opens up when light dims, to let in more light. This uncovers the main damaged area and allows more light to travel through. Resulting in more vision distortions.