UK Keratoconus Self-Help and Support Association

Hello there
I am 23 years of age and have been wearing RGP for the past 6 years now. My condition is worse in my right eye compared to my left. I am quite used to wearing the lenses, however i am having problems of loosing my lens quite oftenly recently. I am having to pay £53.00 every few months and obviously the cost is adding up. I am looking for a treatment option, which would allow me not to wear contact lenses all day, every day. When reading through the treatment options on the website, found the intacs quite useful. Would this be a good option and where would i be able to have this done? .

Also, i now have 2 children. Would it be likely for them to inherit this condition too?

Thanks xxx

Hello Mariam and welcome to the forum,
Are you losing your lenses because they flip out of your eye and then disappear for ever? If so, it could be that the fit is less than ideal or that a different type of lens would be better for you. (I recently had a slightly bigger lens prescribed which has made all the difference to how stable it is in the eye). Intacs work well for some people, but they don't offer any guarantee that you won't still need to wear contact lenses afterwards. And for some people they just don't work, so you need to weigh up the pros and cons. If you e-mail me your postal address anne@keratoconus-group.org.uk I can send you more information about the various options for KC, including the variety of contact lenses now available.
As for your children inheriting KC, it's very unlikely. Only around 13% of people with KC have anyone else in the family with it and even where it does seem to run in a family, it often skips generations. Genetic studies of KC have had trouble finding enough families where more than one generation has KC which is encouraging! Of course, there are no guarantees, and you should mention your KC when your children go to the optician. But with all the advances in research and treatment options, I'm sure KC will less of a problem to future generations.
All the best
Anne

Thank u very much for the info Anne. I will send u my address soon. With regards to my kids...glad 2 hear that ! Thanks xx