UK Keratoconus Self-Help and Support Association

My husband was diagnosed with keratoconus years ago. He had his first cornea graft in 1997, and a second (lamellar) graft in 2006. He's 36.
I wasn't around for the first graft - 2nd went very well and he was back at work after a month.
He finally went back to specsavers today for a routine check up that is long overdue.
He has deposits on his eyes, and his optician said his eyes are just about legal for driving, and that he's referring him to an eye specialist for further tests..

That's all I know. I've done the google research, and the only thing that it throws up is AMD, but he seems far too young for that?

We're Shropshire based - appointment will be in Shrewsbury. If anyone has any info or knowledge it would be gratefully appreciated - wish I'd found this forum 5 years ago.

Hello Bulmers and welcome,
It's obviously a worrying time for you and your husband, but I'm afraid no one can give you a diagnosis without a proper examination of your husband's eyes, so I hope he doesn't have too long to wait before the hospital appointment. Has your husband worn glasses or contact lenses since his grafts? Did the optician say any more about what the 'deposits' on his eye were and whether they were on the cornea or on a different part of the eye? Vision can change in grafted eyes as the years go by - mine were around 25 years ago and I've had a few changes in prescriptions since then. Do let us know how things go.
All the best
Anne

Thanks Anne.Sorry for the delay in replying.
He's worn glasses since the graft. It appears the deposits were on his retina, so it could be something totally non keratoconus related.
He went to the GP yesterday, who took a urine sample and he's going back for blood tests. While he doesn't exhibit any of the typical diabetic signs, both his uncles are or were Type 1, so it's no harm to rule it out.
The GP did say that it could be something as simple as cholestrol deposits.
All we can do is hope it's not too serious and chase up the appointment. Chances are his glasses are way out of date, but the optician , understandably, was reluctant to move this further until we know just what is going on there.

I'm no expert, but it does sound as though it's probably nothing to do with your husband's KC. Unfortunately having one eye condition doesn't make us immune from developing a different one. I hope the specialist appt comes through soon and you get some answers.
All the very best
Anne