UK Keratoconus Self-Help and Support Association

Hello, I have just come accross this site and hope you can help me. I was told I had KT in my right eye approx 3/4 years ago folllowing a refferal to the hospital Optomitist, following a normal eye test at spec savers. It is controlled by wearing contacts 24/7.

The man I saw at the Hospital then treated me under the NHS in his own practice. He gave me eye tests and lenses every few months. I went to see him yesterday and he said its no longer available for free on the NHS due to cut backs, and I now have to pay £30.00 a month. Has anyone else heard this?
I can't seem to google anything on it and I am trying to establis hif its becasue he longer does NHS or its accross the country. Its really worrying me as I will struggle to suddenly find the extra £30.00 a month. I am not classed as 'low income' but its still a weeks shopping for me, so need to be sure.

Also my employer only gives me vouchers for specsavers, who aren't the best to eye test me with the condition.

If anyone knows whats happening or has any links, would be much appreciated.
I don't understand if i have this considtion why they are suddenly no longer helping on the NHS. What happens if I have to go back to glasses and it gets worse?

I am really worried att he moment. Thank you.

Cathy

Cathy

Welcome to the forum.

There are things to which you are absolutely entitled under the NHS, and if you have lost contact with you hospital ophthalmology department, you should ask your GP for a referral back into that system.

Your ophthalmologist will refer you to which ever optometrist looks after contact lens fittings for your hospital. You are entitled to contact lenses that will cost you £52.50 per eye, and if your prescription or fit changes within twelve months you will be entitled to subsequent dispensed lenses free.

If your local hospital is not offering a comprehensive service for people with keratoconus, ask for a referral to a hospital nearby that does offer such a service.

Every good wish.

Andrew