UK Keratoconus Self-Help and Support Association

Hi, I've kad KC for about 15 years and my local OP advised that GP lenses were the option for me. However, after many fittings and having tried and tried and tried to wear them I am no further along. He hasn't informed me of any other options available and now I am struggling along without any form of assistance and quite reluctant to re-visit him. Does anyone have any advice on other forms of aids and is it worth me going to another OP? Any help gratefully rec.

cevans

Welcome to the forum.

I am sorry that your optometrist seems not to have tried any of the very wide range of alternative lens types for people with keratoconus.

In my time I have tried hybrids (now more reliable than they once were), piggy backing (hard lens resting on a soft lens 'liner', sclerals (large lenses that vault over the cornea; this was my all time favourite lens and I understand that there have been recent refinements to this type of lens), different rgp corneals, soft lenses for KC (now considerably improved thanks to recent developments).

It may be that you are seeing an optometrist who is not experienced at dealing with people with KC, and if this is the case, why not ask your hospital for a referral to a specialist optometrist, either with the hospital or in the area?

Every good wish

Andrew

definitely try to see someone else if you are not happy with the solution you currently have. there are loads of options and you should keep searching for the one that works for you....
good luck