UK Keratoconus Self-Help and Support Association

Hi all

My name is Mark, and I was diagnosed with Keratoconus in the early 90's. managed to get a referral to Chertsy hospital, where they had the only Topographical imager in the south. Managed to go private and get refered to a Harley St ophthalmologist, who operated on my eye in '95.

Still needed glasses and it has got worse over the last few years, even stopping me from doing active duty in Iraq 2006. I have now done something and been refereed to an ophthalmologist in Ipswich. 1 appointment with him within a week of referral and now have an op date of 30th Juen for another graft.

This time I am hoping for a good result as the first op was early days in Keratoconus treatment in the UK.

I have always suffered with bright lights and have spent much of my life with my right eye just about shut!

Now looking forward to my op and see what new life that brings!

Regards

Mark

Hello Mark, and welcome to the forum.

Early 90's was not really "early days" of KC treatment in the UK. Indeed the cornea transplant has been fairly standard treatment for advanced KC for a very long time indeed, and the prescription of contact lenses has been common for as long as any of us has been alive.

The problem that we have is that no treatment comes with a guarantee attached to it.

we all wish you well with your second graft. Am I right to assume that this is to be going into the same eye as the first?

Every good wish

Andrew

PS I have removed the names of the surgeons from your post, in order to protect the position of the trustees.

AM

Hi, and welcome to the forums.
Good lcuk with the new graft - hope it works better this time.
COuld you be one of the people who had an early DALK? - a partially-thickness graft?
DO be aware that in some people, being hypersensitive to bright lights can be a neurological reaction - in the optic nerve or the brain itself - not in the eye; and in this case, a graft can actually make the prolem worse. If you've ever found you're more light sensitive with glasses and/or contact lenses than without, you could be in this category.
This type of light sensitivity isn't directly related to KC - though there is a statistical tendency for people who already have one eye condition to develop photosensitivity problems too.
Stay in touch nd let us know how you get on.
Rosemary