UK Keratoconus Self-Help and Support Association

My son is 19 and has Downs Syndrome and was diagnosed with Keratoconus last June. This has left him with very reduced vision in is left eye due to fibrous tissue. At the time his right eye was fine, but we were devastated to be told last week that the right eye has gone te same way and will require cross limking to save the sight. Because the cornea is so thin they cannot do the 2 procedures together and the UV light will have to be done at a later date when the cornea is a bit more strenghtened. Jamie is not very co operative so this will have to be done under g a. I wonder if anyone has had similar experiences? I am so worried for him. Any comments would be most welcome. Thank you

Hello Jamie and welcome to the forum
Yes, we do have a member of the group with Downs Syndrome who had crosslinking done under GA. His experience was written up in a recent newsletter. If you e-mail anne@keratoconus-group.org.uk I can send it to you along with other information.
All the best
Anne

Hi Jamie,

I am a little confused here. Cross linking can only occur when the riboflavin drops are activated by UV light. It is never, as far as I know, done in 2 sessions as the drops and UV are required at the same time. Are you talking about another procedure as well such as INTACs?

Lynn