UK Keratoconus Self-Help and Support Association

Hi,
I just did a search on facebook to link with this self help group but can't find a page for this one. There are several others on there.... just wondered if this group has any plans on using facebook?

Thanks

Julia

Julia

Quite a lot of us have facebook accounts, and there is a link to this site from my profile.

I wonder whether John has any plans to develop a facebook 'fanpage' that links to the forum?

Andrew

Thanks Andrew - I ask for two reasons really. Firstly I understand as a group you are dedicated to raising the profile of this condition so that may be a 'quick win' getting exposure to a larger audience on facebook.

Secondly as KC afflicts a large proportion of relative youngsters, a good proportion of them are active on Facebook and very 'social network site savvy' (this includes my son ) so it could lead to a higher membership of this group as it is more accessible to them.

I note my son has already linked his profile to a Kerataconus support group on facebook, but (obviously) not this one! Just random thoughts

Hi. I use facebook too so I have just put a link to this site from my facebook page. I hope friends will find their way here and read up on KC which affects my 17yr old daughter, Charlotte. I hope this is ok and doesn't go against any of the T&C on here? If so I will remove it asap. Thanks. Angie4Char

I am fairly easy to find on facebook as only person with my name, feel free to Private message me and i wil llet you know my full name...

there is a very good KC group on facebook which i have been a member of for nearly a year now...

lea
x

I have added a link to us on my facebook page and it was noticed by a school friend of mine who I didn't know had KC! She is now a member here.

It is a good idea as young people especially will find us easier. You are more than welcome to add a link to us!

Love Claire X x X