UK Keratoconus Self-Help and Support Association

Top quality KC professional healthcare in the UK.

Where and who?

I invite the KC community who visit here to help and support those who have not yet found the solution by naming them if you have been successful in this quest.

Could the powers that be (committee, mods, etc) please refrain from contributing on this thread.

You ask for contributions on excellent healthcare and then invite people who may have a contribution NOT to contribute?

I am struggling to make any sense of that odd conjunction, but for the record let me say again that I ad delighted with the standard of care that I and my family receive from both ophthalmologists and optometrists at the Tenent Inatitute of Ophthalmology (Glasgow).

I also attend a high Street optician who is excellent (details posted on the members only list) and have suggested privately that other high st opticians are also very good with patients who have KC.

If you - or anyone - is after scleral lenses, thenI, and I gather several others on thiese fora,
have a great deal of regard for the legendary Ken.
Ken Pullum, private practice in Hartford, also does days at Moorfields in London , John Radcliffe outside Oxford and I think elsewhere too.
ISTR he has his own website, suggest google.
Before Ken, I used to see Keith Nelson, at Render Layfields in Birkenhead. I gather he has retired now and many are mourning his departure for the golf course.
As regards the medics -
- I'm sure all the ones I've seen are very good at eyes.
Iam still hoping to find one who is equally as good at dealing with fellow intelligent human beings!
[I'll make an exception for John Brookes in the glaucoma clinic, but hopefully (!) won't be needing to go there much longer, and it is hopefully not everyone's part of KC treatment)
WOuld like to find a steer on this one myself.
No names no pack drill - in public at least - on bad experiences.
Never worn any type of lenses sinceexcept sclerals ever since age 14, so can't suggest anything there.
I gathervarious people here get on well with Lynn and kerasofts.
Hope this helps.
I think a lot of difficulty many of us have with this question is, most of us only see one or two people,
so we have little experience to compae and contrast.
We know if we have lenses that are comfy and can see well. Or not.
But that relfect more on whether we have easy or difficult eyes.
We know if we have to wait for ages in gloomy waiting rooms, whether we are treated as civilised humans or eye conditions on legs.
And whether the hospital cafe/machine coffee is overpriced and disgusting.
But that's very different from whether the practitioners are experts at KC.
If someone says they can't do any better for my eyes, is that their limitation or that I ahve very odd eyes? How do I tell?
Just my two penn/orth. Hope it helps.
Rosemary

Well, I would say who I've had excellent care from, but you obviously don't want my response! Very odd.

All I will do is remind our members that the "member's only" part of the site has just such a recommendation list. Access is available to all the members of the charity (i.e. if you're on the mailing list) - if you've not found the access details in the newsletter, they are available on request.

Thanks for the response Rosemary.

Is that it then folks, nowhere else then?