UK Keratoconus Self-Help and Support Association

Well I have finally done it - had crosslinking done in my right eye last week Thursday and was much less painful then anticipated.
I have progressive KC in both my eyes and about 7 years ago I had a DLK in my left eye. Post op vision was non-functional for the longest time and about 3 months ago I underwent microsurgery to try to rectify the post-op astigmastism and the shape of the graft. Success, finally after 7 years a lens can be fitted on my left eye (kerasoft lens) and the vision is not to bad at all - not as crisp as a hard lens but so comfortable that I can live without the crispness. Then the bad news. My right eye is progressing and I can no longer get any comfort with RGP lenses.I was advised to consider a DLK but after some research opted instead for crosslinking. I have nothing to lose as my only other option is a graft. I was able to fit a kerasoft lens to allow my cornea to demould prior to crosslinking.
To add to my woes, I have allergic conjunctivitis on and off, making it almost impossible sometimes to wear a lens.
Anyway, four days post cxl now,no pain, no light senstivity and I think the milkyness is beginning to go away. I will keep you all informed of my progress but if you are considering cxl or a graft, please contact me as I am happy to share my experiences.
Gail

Following up on my previous post, now eight days post CXL in my right eye. As per my consultant I could reinsert my soft lens (kerasoft lens) a week after the procedure. I seem to have tolerated the procedure quite well, there is no pain, light sensitivity and the milkyness seems to be completely gone. I am now wearing my lens again and all seems fine. Although some patients have experienced an increase in vision post CXL, I was advised that I should not expect it as I am severly myopic (even in the absence of the KC). My goal was not to increase my vision but rather to stop or slow down the progresssion of the KC in my ungrafted eye.
Now if only the allergic conjunctivitis in my left (grafted) eye could get under control...

Gail,

Really happy to hear some really good news!! I do hope that this procedure will slow down your KC progression. Great that the vision is clearing now, it is good to try something before you resort to having another graft!

Take care, love Claire X x X