UK Keratoconus Self-Help and Support Association

Hallo everyone. I am about to have Crosslinking done, on my right more affected by KC eye, in June. My doctor said that there is a chance of returning a fraction of my vision back after Crosslinking, as the condition is not very advanced. Most academic and other articles I've read however, argue that the procedure only strengthens the cornea to avoid further development of KC. I would kindly like to ask users of the forum that have had the procedure done to share if they have had improvements after Crosslinking. Also, has there been anyone who had the condition progressing further after the procedure?

Thank you in advance. I am planning to share my experience with Crosslinking in detail when the time comes as I have found others' experiences and advice very helpful and would like to contribute to the forum.

Martin

Hi Martin.
I have had cxl combined with limited topography-guided prk.
The scope of the cxl is to stop or slow the rate of KC progression and not to provide a better vision, but in some cases people have gained 1 or 2 lines after the treatment.
From what I have read it has proved to be efficient in most cases (with minor exceptions where cxl was performed again), although there are no long-term results ( > 8 years).
In general, the sooner you have cxl the better, but the absence of the long-term effects presents a risk that you must take.
As far as I am concerned, my KC is stable for a year after the treatment and prk has improved my vision, although I would propose this combination only if your vision is quite deteriorated (I am quite satisfied with the results but have no idea of any possible side-effects after 10 or 20 years).

Lars