UK Keratoconus Self-Help and Support Association

So after my visit to the opticians yesterday due to a problem with my vision, i was referred upto the hospital today as the optician thought i had an infection in my right eye and wanted my to have steroid eye drops to clear the infection up. Went to the clinic today and saw the eye doctor and was told that there was no sign of infection but i was suffering with dry eyes (both eyes) which could explain the reduced vision in my right eye and that he could see a definite cone in my right eye (previously non-KC eye) and I would soon not be able to manage with glasses as I have been doing . Obviously this is a early diagnosis of KC in my right eye and as yet I dont know how advanced it is (due back in clinic in 10 days time) but I was wondering about the options of the cross-linking to maybe halt/slow down the progress in my right eye. Is this available on the NHS anywhere, or is it a private procedure only at the moment? What are the sucess rates of the crosslinking in early diagnosis KC? any other information that anyone has got would also be more than welcome.

I have always been lucky in that i have had a very good eye so am currently a bit shell-shocked i have now been diagnosed with KC in my right eye, nearly 10 years after first diagnosis of KC in my left eye.

Hi Lizb

I am sorry to hear about your right eye ...I know just how you feel as I was diagnosed in left eye but had 8 years of good right eye. 2 years ago right eye got KC aswell and had quite a loss in sight but it is stable at the mo. I also have been told they have gone as far as they can glasses wise for correction of right eye.

I am getting my graft out the way on left eye 1st then also want to look at options for right before it gets to the stage of left. I'm sorry I dont know much about crosslinking but I hope things things go OK for you in clinic and it is not too advanced.

My thoughts are with you as I know how worrying it is when it develops in ur good eye

All the best
Lucy

I am so sorry to hear your dolorous news. Maybe you had begun to hope that you had got away with it in your right eye, and then along comes news of a cone and WHAM you are facing the same sort of think in your one eye that you had already got used to facing in your other.

Every good wish as you accommodate to this news; good wishes with the management of your KC in each eye.

Andrew

I had begun to hope that i had "got away" with it in my right eye (am now 30) and as i had only been at the opticians yesterday (along with regular CL appointments recently) and no-one there had picked up on it, it was a rather large shock to the system today. i thought the doc had gotten confused and was talking about my left eye when he started saying about KC in the eye.