Can C3R Cross linking be done for Advanced KC
Posted: Sat 15 Nov 2008 8:48 pm
by naveed
I want to know I have very advanced stage of KC but , still if i use contacts I get very good vision and without that almost nothing.
I know CXL can not fix it but i still want it done because i will then save me from having transplant , hydrop and i can keep on using Lenses .... for longer .
I have very thin cornea about 370 but I have now known that It can be done for less than 400 but using some special drops .
Please help.
Thanks
Also I have increased size to make it easier for all of us
Re: Can C3R Cross linking be done for Advanced KC
Posted: Sat 15 Nov 2008 8:58 pm
by Andrew MacLean
Naveed
Conventional wisdom is that CXL is not offered to people with advanced Keratoconus.
Andrew
ps thank you for increasing the size of your font; I needed that!
Re: Can C3R Cross linking be done for Advanced KC
Posted: Sat 15 Nov 2008 11:05 pm
by rosemary johnson
Naveed,
I have no idea, I'm afraid, of the name and address of anyone in particular who might do a CXL on "overthin" corneas - but in the UK you'll have to pa for it if it does not come within the remit of NICE guidelines and so is not eligible for the trials.
If you have very good vision in contact lenses, and it is not changing rapidly, it is possible your KC may be pretty stable anyway, and so a transplant is not likely to be on the horizon - at least, not within the timescales that we yet know CXL would "buy time" for anyway.
Of course, no-one here has seen you eyes, so maybe that "if" is not right.
Please don't panic about the possibility of having a hydrops - I had 4 but they are a "minority interest" and lots of people never do have one at all. And I survived all 4 fine! The chances of you having one are probably remote; and if you do, the chances are it will actually have the same effect as the CXL in stiffening the cornea and slowing the KC, for a much smaller cost, and probably no more pain and disruption!
Rosemary
Re: Can C3R Cross linking be done for Advanced KC
Posted: Sun 16 Nov 2008 9:29 am
by naveed
Thanks