UK Keratoconus Self-Help and Support Association

Hi folks,

I went to the opticians yesterday just for a sight test. The vision in my left eye is virtually non existant even with my scleral in and my right eye is slightly more shortsighted. I can see reasonably well with both eyes I have to say. I am having bifocals to save me keep having to swap glasses all the time and to cap it all I now have cataracts developing in both eyes.

I told her my vision is much better when I wear my sunglasses and she thinks it may be because of the shape of my cone and light entering it. (I'm going to ask Ken next time I see him.) My new glasses will have a slight tint to them to see if it makes any difference. She is also going to see if she can get me a pair of single pinhole glasses so I can give my eyes a rest from the scleral lenses occaissionally as I wear them for about 16 hours daily.

It is just sooooo frustrating having to rely on other people to drive me around now because I have had to stop for the past year.

Well that's my moan, thanks for listening. It's nice to know I'm not alone.

Lesley.

ps Happy New Year one and all.

Lesley

Have you been registered blind or partially sighted? If not, I really think it might be worth asking your ophthalmologist about registration; it does nothing for your sight but it does open a whole range of support options for you.

Andrew

Thanks Andrew,

I will look into it, no pun intended! I have wondered whether i would be eligible because my sight is ok with my lenses in but absolutely useless without them. I'll let you know how I get on.

Lesley.

Hi Lesley.

I am sorry to hear that you are struggling at the moment.

I lived with cataracts, without knowing it for a number of years, and it reached the stage where I had to wear sunglasses to watch tv and I sometimes had baths with the light off. I found the symptoms to be very similar to KC and thought the next step was a graft.

I had the cataracts sorted earlier in the year and I can't believe how well I am now seeing, albeit with a few comfort issues with my lenses.

Obviously your situation may be entirely different to mine, but hopefully cataract surgery will help you in a similar way.

Well I now have my bifocals and it's really strange. I think it will take a while to get ised to them so hopefu;;y I won't fall down the stair too many times

Don't know if the optician has managed to find out about the pinhole lenses yet as she was busy when I picked my glasses up, I'll try and find out next week.

Till then if you hear lots of screams you'll know it's me missing the stairs again.

Cheers All.

Lesley.

Michael P wrote:
I sometimes had baths with the light off

Sorry Michael - I had to laugh
I thought all of us when we get to our age tended to have baths with the lights off.....easier on the eyes I guess....but nothing to do with having KC....

Pat A wrote:

Michael P wrote:
I sometimes had baths with the light off

Sorry Michael - I had to laugh
I thought all of us when we get to our age tended to have baths with the lights off.....easier on the eyes I guess....but nothing to do with having KC....

Easier on the eyes for whom Pat?

Hi folks,

Haven't been here for a while but thought I'd let you know how things are going.

I'm managing ok with the bifocals, only slipped up once! I went and saw KP last week and he is very pleased with me doesn't want to see me for another year/18 months so that's good. I haven't done anything about the pinhole glasses yet, have had a few other things on my plate, but Ken suggested a circle of holes with one in the centre so I must sort that out.

He took some photos of the inside of my eyes which were quite fascinating, sorry I don't have copies for you to see, but the right one clearly showed the scar across my retina which should mean I shouldn't have very much vision from it at all so it is a surprise to everyone how much I can see with it. Somebody up there likes me that is the only explanationwe have.

Other than that things are ok, frustrating at times but ok. like I say my sight maybe good but the vision is c**p

Cheers all.

Lesley.