UK Keratoconus Self-Help and Support Association

I've been getting fitted for my first pair of RGP's over the past few months or so, and I have a great fitter who has done really well and gotten them about the best he can. He says that I am lucky because my vision is close to 20/20 ( I live in the US) in both eyes (its a little worse in my left eye because the KC is worse there).

The problem is, even with how great everything seems on paper, I am struggling. My left eye just doesn't seem to catch up to my right eye, if this makes any sense. I have a really hard time maintaining concentration and it really affects my confidence in lots of situations to be honest

I think its due to the the fact that the KC is quite bad in my left eye. I get lots of ghosting and blurring in that eye. And when I try to use my eyes together, I have double vision, and a hard time focusing. Its harder to focus on things close up. This has always been my main compaint about KC, and I was really hoping the RGP's would help. Also, my light sensitivity is really quite bad with RGP's...strong lights are a nightmare.

Anyways, I just wanted to get some feedback, and see what you guys would recommend. I am beginning to think that some sort of surgery will be my only hope for helping this. Unfortunately, I can't afford that right now. So for now I'll just stick with the RGP's and hope maybe they'll get better with time since they're fairly new.

Hi Timtim
Wish I could help with some good ideas - but I can't I'm afraid.

All I can do is empathise with you - I get problems just like yours - and it turns out I don't actually have KC - just something not dissimilar. I really struggle to concentrate, can't see to read or see anything in any detail close up - and distant things have loads of ghosting too. And it is really hard explaining to others how difficult it is sometimes. And it gets you down doesn't it.

So all I can say is you are not alone - probably doesn't help much but..

Hang on in there!

Pat

Tim,

Hard to advise as we are not proffesionals, the double vision may be due to your brain getting used to the information, your eyes just not ligning up as they should or soemthing elses. This can only be discussed with your optom.

I was at a contact lens manufacturer yesterday and the machine thinks I should be able to see fine with glasses, yet I can not, however the machine is suggesting I need further correction in another plane which no one has mentioned before. Therefore you may well need a more detailed eye exam beyond the KC/corneal examination.

tim

I agree that it is hard to know what is going on in your eyes. You would need to consult an eyecare porfessional to find this out.

I did, however, have a similar experience all the time I wore contact lenses: the long and the short of it was that my eyes had such different prescriotions that they gave different sized images.

I leanred to look through only one eye at a time: a trick that I still employ. This is not hard to do; I thinbk that most people can learn to switch between eyes without too much difficulty.

But that was the cause of my double-vision. Yours may be different.

All the best

Andrew