UK Keratoconus Self-Help and Support Association

Not posted for a while, but been away fulfilling other KC responsibilities to our members

Just before going on holiday last week had some excellent news in that since the re-emergence of KC in my grafted eye in August 2004, the vision is still unchanged. So depsite a rapid vision deterioration over three months we now have three years stability. Still on the original contact lenses too.

Got invited to chat with another KC patient who has only had lenses for 6 months and was having vision problems. Hopefully that person accepts they need to take more care of their lenses because they were filthy.

Why is it we are prepeared to listen to a fellow patient rather than the specialists trying to care for us?

Excellent news, Gareth!

And thank you for giving another sufferer good advice on lens care.

Andrew

Thats really good news i bet your very pleased.

so was the person you saw with dirty lenses a member of the forum? are you going to name and shame?

The person knew nothing of the support group, but I left them with the support group business card.

Still working with the hospital powers that be to expand the Midlands group, still have the usual hurdle of too many support groups competing for the small amount of space on the notice board.