UK Keratoconus Self-Help and Support Association

After about 3 or 4 years of really struggling with my sight, I finally have an appointment with an experienced KC lens fitter on August 2nd. I am 26 and just found out I had KC last December. So since then, I've been learning about things (while in soft lenses), and I tried RGP's once unsuccessfully (but the doctor I went to had very little experience fitting KC patients I think). So yeah, I just want to say I finally feel hopeful and like I can maybe get some help. It really been probably the hardest thing I've ever had to deal with...so hard for your vision to be uncomfortable all day, every day.

If any one has any advice or things to keep in mind for my first visit, please let me know. Whether it's about a type of lens you recommend, or some things to ask the doc.

Tim,

When having a lens fitted get a cab or a friend to take you. Having a friend in the consultation to take notes is also really helpfull. It is very easy to get information over load.

When having lens fitted give as much feedback as possible such as lens comfort. If it uncomfortable where on the eye do you notice it. Describe what you see and so on.

The lens fitter can say if a lens looks OK on the eye, the rest is down to what you tell them. Minor detail can be more important than the obveous stuff.

Once a lens is decided on, ask what type it is, how to care for it, put lenses in and out, build up wear time and so on.

Good luck.

Gareth