UK Keratoconus Self-Help and Support Association

Yeah i finally have a new date for my corneal graft on my right eye it is to be the 16th july but i have to go in on the 15th I am really nervous and excited at the sametime although i am trying not to get to excited as it got canceled last yime if you remmber i should have had it back in may.
Any way hope you are all well. Oh does any one know where I could get a good pair of sports glasses from for after the op as when I return back to work even though i wont be playing sports will still need to wear some as the kids will still be playing sport and you just cann1t be to carefull
Speak to you all soon
luv
martwoman

Good news on the graft front, will try and think of you on the 15th while celebrating my wedding anniversary.

Like you I was excited and daunted at the same time before my each of my grafts. Afterwards I wonderd what all the fuss was about.

I was asked at the confrence about sports glasses. I have tinted safety glasses with a snazzy cord on them which I can pull tight so less chance getting dislodged.

A year or so ago I was asked to look up sports glasses for someone playing squash. All I did was a google search and posted it here, but forgot to save the links on my home pc. Cycle shops are good at doing sports glasses for cycling so worth giving them ago.

Good luck for the 15th/16th hope all goes well for you.

best wishes

Susan

Thanks for that gareth will try cycling shops and hope
you have a great wedding anniversary. and thanks to susan for wishing me lick i am sure it will go ok.
Regards to you both
martwoman

I have found out today that the hospital were i will be having my op done wont find out till about thursday wether there is a donor available/suitable for me and i wont find out till friday wether my op will take place or not. So feeling a bit gutted and sad. I hope it doesn't get canceled again but it looks like it might I have been warned i might have to wait a long time for a donor to come up as i am only young. I have also read on a website some were that some poor lad who had his transplant done at qmc where i am having mine done had to wait 2yrs for a donor lets hope i don't have to wait that long as i am a high priority case. Any way thats enough of me moaning on.
Take care all
Regards
martwoman

It would be rude of me to ask your age.

I had my first graft at 18 and the wait was not long at all, that was nearly 20 years ago.

Hope the hospital is just being cauteous and everything goes ahead as planned.

thanks for that you've cheered be up
Oh by the way i am 26 and have been waiting 5 months for my op since i was told i needed a graft and 2 monyhs since it got canceled i do hope the hospital are being cautous but surgeons sec said she had phoned the eye bank and said they said they want know till thursday if they will have a suitable donor but lets hope they do

Hi Martwoman,

Good luck - I hope it all goes ok.

And at the end of the day, better a suitable donor than an unsuitable one. The unsuitable one could be out drinking all night, smoking, having late parties when all you want to be to do is see...

I'll go now..

Ed

Cheers Ed that made me laugh which is what i need right know as i have been feeling a bit low this week only been of anti-depressants for a month friends say I am doing reallt well as some of the things I am saying/doing now i wouldn't have done/said back at chrisfmas they say im back to my normal bubbly outgoing person i was before being diagnosed with KC yipeee

Take care
luv
martwoman

Many of us have been through the anti depresents stage and councelling with it.

You are not alone and counceling can work wonders. That and this support group turned my life around.