am i deprived of work for rest of my life?

[eman samir]

i will be graduated on this month....so i am thinking now about work.i found that i am afraid i can't work.i usually can't see what other see.most of people here don't know what KC is.i can't read or use computer for long time and most of time i have a headache.i don't know if i can work well or not.i get bored seeing ghosts of every things.lights annoy me so much.i am thinking that these problem may face me at work.

[piper]

ES......this isn't easy, no one said it was.......you must do what you can do. If I could run my violin shop and develop means of doing all my work, however fine and detailed, then you can do computer work. I imagine that you are working on a PC and there are ways of expading any text or window with a couple of manipulations. If you are using a Macintosh, it is even easier and the screen contrast and color or REVERSE IMAGE is one keystroke away......how do you think I have been using my Mac during this whole thing? Buy a magnifying visor....work slowly and carefully. Get some HEAD-ON, and rub it on your forehead to aleviate the headaches, GatorAide drink helps lots of people too.

Whatever you do, you cannot quit......lots of people with greater problems get up and struggle in to work everyday.

Toughen up........do what you can do......do everything you can do.......

In support, Piper

[Sweet]

Eman,

KC is a hard condition and it is unknown to most people which makes it harder to explain. You can work through this though. Piper has given you some excellent ideas on dealing with text and pcs.

Be strong and know that we are always here to support you. Love Sweet X x X

[GarethB]

Eman

KC has failed to stop you studying so why should it stop you working?

Piper gives examples of enhancing text on the pc. I know you are outside the UK, but do a google search for the RNIB in the UK, they have loads of good things for helping visually impaired. It may well give ideas of what things to look for in your own country.

Gareth

[John Smith]

Eman,

I agree with everything written above. Of course, there is always the "next step".

If your KC has reached a point where your quality of life has deteriorated significantly, then you may have reached the time to consider moving up to the next level in your KC management, be it scleral lenses, Intacs or even a graft.

I'd discuss the options with your ophthalmologist at your next appointment.

[Pat A]

Eman
No - you are not! You are young and have a huge amount to offer an employer, especially in the field of pharmacy (which ironically was what I was going to do before I flunked my exams!). Hang on there and be positive - and see my new topic "some good news..."
And are you managing to wear your lenses now? If not, please give it another go!

[Susan Mason]

Hi Eman

Keep going don't let anything put you off. Have bad days/weeks by all means it's only natural however, do not give up!

As already mentioned if you have studied so far why not now work, will there really be that much difference???

Just be reassured by the fact that many others with no hurdles to overcome do at times do such a poor job well it makes you sit up and realise we are still worth it. We may be a little slow at times however, still have what it takes - guts, determination and get up and go (although I sometimes think mine got up and went )

Best wishes

Susan

[Karl R]

....so i am thinking now about work.i found that i am afraid i can't work.i usually can't see what other see.most of people here don't know what KC is.

Eman, having successfully come this far and graduate you cannot give up now!!!!! Why throw it all away???????????

Up until now you have let your life manage your KC and not the other way around, long may this continue. To me it sounds like you're nervous about going into the big bad world of paid work and I can understand that.

You have a great opportunity to educate those around you and potential employers/work colleagues as to what KC is; seize this opportunity with both hands as the more people know about KC and its effects, the more they will understand and the easier it will become for fellow sufferers in the long term.

People with KC are stronger characters all round than those 'normal' sighted people as we have to constantly face and overcome challenges.

Have confidence in yourself and your abilities. Remember you are amongst friends here and we will give you all the help and support that we can.

[Lynn White]

Eman

Lots of good advice here and I think I agree with Karl that the natural worry of leaving the "security" of study and going out in the world where you have to prove yourself to people all over again, explain yourself all over again, is feeling like too much to handle.

It often happens that even people who do understand KC, know all the issues and are totally sympathetic can simply forget you can't see things. So the fact that not many people around you know about or understand KC is something that will always be with you where ever you are.

I was airport security with a colleague a few weeks ago and they were making us take off our shoes. My colleague looked somewhat alarmed and I asked if we OK. He told me that he had just had a major spinal op and his back was somewhat fragile and he was afraid if he bent down he would break in two! We managed to sort his shoes without him bending down (with a good deal of laughter I might add) but my point is here that I had no idea he had had such a serious and major problem (the probability was he could have been left paralysed by that op).

We don't know what other people go through in their lives either unless they tell us, so when you feel down like this, count up the positive things in your life.

All the best!

Lynn