UK Keratoconus Self-Help and Support Association

Hey everyone!!!

I am just about to burst!!!!!!!!! LOL!!! For once I have good news!!!

I have just come back from Moorfields and have now got my new lens for my grafted eye! So excited as the optom with my private surgeon couldn't find a lens that I found comfortable, but this new lens is fantastic! I can't feel it! Hehe some here post graft might guess that this is a Rose K and they are right It is the greatest thing ever, as I now read four lines when I could only see a light box before!!! I did see three lines with sclerals but they were so painful that I gave up. Ecstatic is not a big enough word now!!! I now have binocular vision which I have never had!!! 30 years to finally see well with BOTH eyes!!!

The only sad thing is that I have just taken this lens out as I need to build up wearing time. Hehe a big thing for me when I have never done that and this lens just feels so dam nice!! Awww it's gone now until tomorrow hehe

BUT ... then I get to play with it again for two hours!!!!!!!!

A HUGE thank you to everyone here who posted when I went for a graft, for all the support I have had, for loads of help and advice when everyone including me was amazed when I did have some patience to wait almost two years to get good vision, and for all the lovely friends I have made along the way!!

Thanks all!

Excellent news sweet - you deserve it!

Sarah
x

Sweet
So, so pleased for you! You deserve some good news so much!

Just one question though -am I right in thinking that you have got the RoseK lens as a private patient - and not on the NHS? Just want to check after what Moorfields told me last week!

Hehe thanks!

I had my graft done privately on my left eye, but I was seeing Moorfields for both eyes and have lenses in the right eye with them where I use piggybacking. I asked them to please look at my grafted eye when I had a check up on the right eye in December and told them about the problems I was having with the private optom I was referred to by my surgeon and Moorfields fitted me with a lens I can't feel which is fantastic!

Even though I went private to get the graft done Moorfields will treat you as a NHS patient if you already are one at the hospital and so I finally paid and got a lens for this eye. I have no worries about paying for eye problems and would have kept this grafted eye as private as I wanted to see! The optom I was referred to was just unable to fit me so I went back to Moorfields as I am a patient with them for both eyes!!

Hope that made sense!!

Claire,

Excellent news.

Pat, both my Rose K lenses are on the NHS, many optoms in the lens unit refer to them as RGP just like anyother RGP lens because they are made from the same material.

Superb news sweet.

You were due some good news to cheer.

Enjoy your two hours tomorrow.

that is excellent news Sweet: you have made me feel much better at the end of an otherwise undistinguished day!

Great news. I am so, so pleased for you.

fantastic news

its success like yours that help me to come to terms with my impending transplant.

very very encouraging

have heard these rose k lenses feel like a velvet glove. is it true?
mike

They are fantastic! I tried piggy backing before which is not a good thing for grafts as Moorfields have since told me but it was painful and the lenses wouldn't stay in place. Am hoping that this Rose K lens will be great!!!

Wishing you all the best when you have a graft!!