UK Keratoconus Self-Help and Support Association

I wanna know how bad KC is for the average person who has to deal with it on a scale of 1-10 compared to other eye conditions like shortsightness. I guess it would vary person to person but is KC really bad? I'm really worried about mine preogressing worse. I shudder the thought of having to wear contacts all the time if it gets to that point (which it probably will) at the moment I wear specs but only corrects vision in my left eye good my right eye is bad. My left eye's KC isnt as bad but really worried it wil leventually become like my right eye and make me wear contacts

Joe

For most people, wearing contact lenses isn't all that bad. It can be a bit of an adventure finding the right materials for each individual, and the style of lens can also take a bit of tracking down. Once the right lens has been found, things do settle down.

Until I had KC I'd have said I would never put anything in my eye. But with lenses I had many years of good correction.

At its worst, KC can leave one legally blind. It should be said, however, tha only a tiny minority of people with KC ever progress to this point. Only a minority ever needs surgical intervention.

I hope that you will always remain in the majority who can cope with glasses or lenses.

Andrew

I have KC and am short sighted aswell

I too have KC and I am shortsighted. I am unable to wear glasses to correct my vision and wear scleral lenses. If I can't wear them I'm b******d

Lesley

Shudder no more Joe Bloggs.

My experience of wearing lenses is that it can be a pain from time to time, but 95% of the time it's no hassle at all.

The first time I went to try lenses, my lens fitter described them as a bit like wearing a watch....you know they're in but most of the time you just don't feel them.

The downside for me is that you get so used to having pretty good vision again, that when you have to take them out things can be a bit tough.

...and the vision you get is sooooo much better than with specs, you can see all round - not just up to the edge of the frame...I heartily recommend lenses....and at the end of the day, what choice have you got?

hi
when you find a really good fitting lens you'll find that theyre like your comfiest pair of slippers and also wonder how you managed with glasses when you find out how much better your vision will be
mike

My KC is at the point despite having grafts in both eyes, if I can not wear lenses then I am legally blind in the right eye and partially sighted in the left.

The only thing it then affects in my life is I can not drive, I can do everything else with very minor adaptations which are no hassle at all.

What about stuff like watching tv though. I enjoy playing computer games as my main hobby.

Pinhole specs can be good for television, and probably computer games as well.

Andrew

Andrew has just pointed out one of the minor adaptations.

Large screen TV helps too along with large screen pc monitor.

Furniture has been slightly rearranged so I can sit comfortably close to the TV while still allowing others to view it.