Another Transplant! Help needed!
Posted: Sat 27 Jan 2007 11:46 pm
Dear all,
1 am a 23 years old young man living in Denmark, suffering from KC for almost 10 years, When diagnosed with KC in 1997,I started wearing RGP on both eyes, which gave me perfect vision and okay comfort. The KC on my eyes has been developing very fast during the past four years. I felt the more severe left eye couldn’t tolerate the lens any more and underwent a Lamella transplant on this eye in Sep of 2004. The healing process was long and the irritation also last a long time. After three months when the sutures were removed, the vision was much better than before, 50 percent with glass. My doctor then performed a LASIK on it. After the LASIK, the corrected vision by glass is actually worse with a lot more astigmatism than before. The horrible feeling and photophobia when I tried RGP was not less than PRE-OP. I surrendered to RGP finally
I contacted Boston Sight Foundation about Boston scleral lens. The doctor there was so nice to recommend me a doctor called Visser in Holland who fits a similar lens to them. I went to Holland last year and fit a pair of sclera lens. The lens is comfortable compared to RGP and the photophobia is reduced dramatically. But the vision is not good as expected, only 60% on the left eye and 70% o the right eye. The vision on the right eye varies from time to time on this eye, getting cloudy sometimes. Compared to this, the left eye with 60% vision is much more functional. The reason must be that the right cornea has been too much washed out and formless by KC, but the left eye is functional with a transparent and healthy cornea.
In May 2006, I went to Rome and had MINI-ARK done on my right eye, which was already on the third stage of KC. It has been 8 months since the surgery, the vision is still poor like hell and the scars on the cornea make my eye very strained. My only sustained hope for waiting was destroyed when last week i went to my optician and found that the best corrected vision with whatever lens is no more than 40% percent. It will be nothing than wasting time if i wait two year as Doctor Lombardi said in Rome.
I am considering a cornea transplant also on the right eye. Although my left eye was transplanted here in Denmark for free, the result was not so good. I have contacted a doctor called Yaron S. Rabinowitz at Cornea-Genetic Eye Medical Institute in Los Angeles and probably will undergo a transplant followed by some Lasik if possible. Since i don't have any idea with the hospitals and doctors in US, is there anyone who knows this hospital or the doctor? Anyone has any suggestions on the hospitals and doctors that are famous at transplant and LASIK in US? Your assistance is highly appreciated!!!
Best wishes to all!!!
David
1 am a 23 years old young man living in Denmark, suffering from KC for almost 10 years, When diagnosed with KC in 1997,I started wearing RGP on both eyes, which gave me perfect vision and okay comfort. The KC on my eyes has been developing very fast during the past four years. I felt the more severe left eye couldn’t tolerate the lens any more and underwent a Lamella transplant on this eye in Sep of 2004. The healing process was long and the irritation also last a long time. After three months when the sutures were removed, the vision was much better than before, 50 percent with glass. My doctor then performed a LASIK on it. After the LASIK, the corrected vision by glass is actually worse with a lot more astigmatism than before. The horrible feeling and photophobia when I tried RGP was not less than PRE-OP. I surrendered to RGP finally
I contacted Boston Sight Foundation about Boston scleral lens. The doctor there was so nice to recommend me a doctor called Visser in Holland who fits a similar lens to them. I went to Holland last year and fit a pair of sclera lens. The lens is comfortable compared to RGP and the photophobia is reduced dramatically. But the vision is not good as expected, only 60% on the left eye and 70% o the right eye. The vision on the right eye varies from time to time on this eye, getting cloudy sometimes. Compared to this, the left eye with 60% vision is much more functional. The reason must be that the right cornea has been too much washed out and formless by KC, but the left eye is functional with a transparent and healthy cornea.
In May 2006, I went to Rome and had MINI-ARK done on my right eye, which was already on the third stage of KC. It has been 8 months since the surgery, the vision is still poor like hell and the scars on the cornea make my eye very strained. My only sustained hope for waiting was destroyed when last week i went to my optician and found that the best corrected vision with whatever lens is no more than 40% percent. It will be nothing than wasting time if i wait two year as Doctor Lombardi said in Rome.
I am considering a cornea transplant also on the right eye. Although my left eye was transplanted here in Denmark for free, the result was not so good. I have contacted a doctor called Yaron S. Rabinowitz at Cornea-Genetic Eye Medical Institute in Los Angeles and probably will undergo a transplant followed by some Lasik if possible. Since i don't have any idea with the hospitals and doctors in US, is there anyone who knows this hospital or the doctor? Anyone has any suggestions on the hospitals and doctors that are famous at transplant and LASIK in US? Your assistance is highly appreciated!!!
Best wishes to all!!!
David