UK Keratoconus Self-Help and Support Association

WELL MY CHECK UP WENT WELL AND HE SAID HE WAS PLEASED AND HE WAS SHOCKED WHEN I TOLD HIM THAT I HAD BEEN IN PAIN AND HE APOLOGISED AND SAID THEY WOULD HAVE KEPT ME IN IF HE HAD KNOWN THAT I WAS GOING TO BE IN PAIN .!!
I HAVENT GOT TO WAIL 2 YEARS FOR MY NEXT GRAFT THEY WILL PUT ME ON THE LIST IN 4-6 MONTHS SO THAT WAS ALSO GOOD NEWS. I STILL CANT OPEN THE EYE AND ITS STILL STICKY PAIN IS GETTING BETTER SO YAY.
I HAVE COME TO THE CONCLUSION THAT SOME PEOPLE HAVE PAIN AFTER A GRAFT AND SOME DONT. MY CONSULTANT DID SEEM GENUINELY SHOCKED THAT I HAD PAIN AND I DONT THINK THAT PEOPLE VOICE THEIR PAIN AND THEY WONT KNOW THAT A GRAFT MIGHT HURT UNLESS WE TELL THEM, SO I THINK WE SHOULD TELL THEM !!

NICOLA

Great to hear that things are getting better for you Nicola! I used to tell people grafts weren't painful, based on my own experience and that of lots of other people who told me about their grafts. But then I came across one or two people who had had pain, so I realised it does sometimes happen. No comfort to you I know, but it does seem to be pretty rare. Most of us just find the eye a bit uncomfortable, sticky or watery after a graft, and unhappy when exposed to bright light. But it's important that those people who do experience pain for the first few days tell the hospital about it - otherwise the medics will continue to assume that no one ever has pain with a graft.
I hope things continue to improve for you over the next few days.
Anne

Nicola

I'm really delighted to know that your pain is easing, and that you seem to be lined up for rapid progrssion to number 2 graft.

All the best

Andrew

Nicola,

Great news about your graft and the update on the next one!! We have found here that some people do get pain so we do need to inform doctors so it was good that they knew.

Take good care of yourself ... Sweet X x X

I'm really glad to hear things are going better for you Nicola, and that your consultant is listening to you about the pain you have been experiencing.

I hope that like me your second graft will be a lot better pain wise.

thanks all for your kind words and support i would be lost without you all