UK Keratoconus Self-Help and Support Association

Ok am not impressed here! LOL! Just come back from seeing my new optom, managed to leave the lens she gave me in for four hours but told her that it still keeps dropping which is dam annoying and i almost lost it once! I know that she is trained in what she does and i have had topographs done so she knows what she is doing, but she doesn't have to wear this lens. Her telling me that it will settle down when it dries out, even though i have worn it for five hours with no change, is no help!

Now i just decided to try my right RGP in just to see if that one drops as well, as i piggy back them both. Contrary to what she thinks will happen it didn't! It felt much more comfortable as it is bigger and it stuck nicely to my silcone piggy back lens.

I need to go back to see her in a months time although i am being seen in Moorfields at about the same time. Am thinking that i am just going to ask their advice instead as they gave me this RGP for my right lens. It is a profile lens and i have had no problems with it.

While i didn't want to get back into the hospital system and had my graft done privately i don't think i have a choice if i want to wear a lens and see something post graft. Am just hoping that maybe they can just fit me with a left lens as well although i have just wasted money paying for a year with an optom when she hasn't helped.

Any ideas?

Thanks for your help! Sweet X x X

Do not kow what to suggest, but saying when the lens drys out it will stay in place sounds odd to me?

When my lens drys out it can not move properly to let the tears flow and then sticks in a position it should not. I need the lens to stay wet.

The other thing is, I thought if the lens was 'dry' on the ye, then abrasions can occur which is the last thing you want on any cornea especially a grafted cornea.

Going to Moorfields sounds good and in addition I would keep a diary of the lens problems you have, perservere for a week, not when you can not use it at work because it is in the wrong place or drops out and go back sooner. At least you have demonstarted that you have given it a go.

Hi Sweet,

I'm sorry to hear that you are having problems with a new lens. I know how it is to look forward to getting a new lens and then to feel so disappointed when it doesn't live up to expectations.

I agree with Gareth, give the lens a week's trial, and if things don't improve go back. I suspect what she means by 'when the lens dries out' is when all the excess solution and tears have gone - I would have thought that would have taken minutes rather than hours.

Seeing Moorfields is probably a good idea - I know you really want to be seen in the community - but the optoms there see loads of us KCers, so if your new optom is unable to find a lens for you they should be able to.

Lia

I have given it time though and i'm tired of trying to explain it to her! I have had this lens for two weeks. It shouldn't take that long to dry out and i have worn lenses long enough to know when something isn't right but i don't think she is listening to me.

My lens does move slightly as there is a soft lens underneath so it isn't going to be totally dry, but it shouldn't move beneath my lower lid either.

I will ask Moorfields when i go to see them for my other eye as i would like the same lens for my grafted eye as it felt really comfortable.

Thanks for your help!

Sweet X x X

Sweet

I really do not know what conditions are like in English Hospitals, all I can do is repeat that my own experience of hospital based optometry was that it was absolutely first rate.

The optometrhists were all very experienced at fitting KC eyes, and endlessly patient when it came to finding the right lens for my eyes, even when my eyes had become severely lens intollerant.

If Moorfields is half as good as Gartnavel, I'd think that they must be well worth a visit.

another option might be to visit your local University Optometry Department. There you will be seen by students who are working under the direct supervision of Professorial and Lecturing staff.

All the best

Andrew

When i think of the amount of times ive reported a major problem with a new lens,had it replaced,only to find its been replaced with the exact same type and sent away being told "it will settle" or "there you go,that one should be better",sometimes i wish i could make these "experts" have to have KC for a week and see how they like being made to feel styoid everytime they have a problem.

It is not quite so bad when the optometrists explains the lens they ahve given you is the best they can do and then goes on to explain why. Then at least you feel you have been listened to.

Yes that is very true! It is more her telling me that no lens will sit right on my eye as they will all drop when i have tried my right lens on this eye and it is fine! Surely this is saying something!!

Sweet X x X

Sweet......wow.....we have all been there I am afraid. I had a lens bond to my eye and take off living tissue when I took it out. That happened the first day I had it. Who says there are no nerves in the cornea?

Here in the states we can request a copy of the prescription or formula, for the lenses. that way a new lens could be made on order through any shop. If you had the formula for the right eye and needed to compare it to the new formula for the left at least you would have some information to work with, as would your specialist.

Sometimes the best medicine is a shot of good Single-malt Scotch, administered orally.

Piper

piper wrote: I had a lens bond to my eye and take off living tissue when I took it out.

Piper

OMG , That sounds horrendous,

Sweet, I am really sorry that you are having yet more problems. Do you know whether your optom, has had much experience with KC?

I must say that I have always been pretty happy to go to Moorfields. They see KC'ers on a regular basis and there is usually somebody around to deal with any problems which need a second opinion.

I hope everything is sorted out, once and for all, very soon.

Take care.