UK Keratoconus Self-Help and Support Association

Hi I'm new to this forum...I've bin diagnosed with KC a couple of months ago and ever since then and a couple of weeks before I've bin getting headaches every single day on and off...sometimes the whole day. They are pains in the back of my head. What is the best thing to do? They just wont go and they really bother me

Thanks in advance

Jay

Hi Jay,

Welcome to the forum.

Headaches can be caused by many things which may or may not come down to KC.

Have you been fitted with lenses or glasses yet?

The reason I ask is as follows;

1) If you do not have lenses or glasses and the world is a distorted blur headaches can often be caused by straining your eyes to understand the blur.

2) If you do have lenses, then the brain can get overloaded with information it is not used to. Plus once you can see again, it is common that we over wear our lenses which can reult in tierd eyes and then to headaches.

3) Subconceous stress, finding you have KC which most people new to this will never have heard of do worry and this can lead to stress headaches.

4) Your work and or home environment can have an impact. I am light sensitive when wearing my lenses and where Iam working today is a lot brighter than the department I am usually working in so I have had to progress steadily to darker and darker glasses to slow the rate at which the headache builds.

5) Airconditioning and other environmental factors can impact on us. When my eye get dry and uncomfortable I can get headaches because my vision has gone down too.

As you say you have headaches since before the KC was diagnosed, it would be advisable to get down to your GP and get it looked into further. If you have an appointment at the eye department in the near future, bring it to their attention too.

Are you employed or a student?

Hope this helps.

Regards

Gareth

G'day, Jay!

Welcome to the forum.

I have nothing to add to Gareth's very comprehensive responses. Just want to say welcome, and hope that your headaches find some relief soon.

Yours aye

Andrew

hey guys thanks a lot for the replies...very infromative. Yes I am a student.

Basically I knew something was first wrong when I was on the computer at night one day and all of a sudden I got a headache. I went to bed and the next morning it was still there.It carried on like this for the next few weeks so i thought i'd see the doctor who then said to see the optician. I was disagnosed with KC and got glasses which were -2 on one eye and -1.5 on the other, but since then my headaches have still not gone and its been almost 3 months. Its always in the back of my head. Ne1 got any suggestions?? Thanks in advance

Jay

Did you ever get a referral to a hospital eye specialist? If not, go back to your GP, explain that you seem to hve Keratoconus and ask for a referral.

You may be better with contact lenses. These can "smoothe out" the effects of Keratoconus and enable you to see well.

Ask your GP if there is any other possible cause for your headaches. Just because we have KC does not mean that nothing else can be awry!

Andrew