UK Keratoconus Self-Help and Support Association

If you wanna show your family what we see<KC patients> please visit this website http://www.drspinello.com/kcvision2

Thanks Eman

they were some interesting photographs, some of which did seem like a good attempt to depict the world as i now see it - however I don't know how much of that is because I am judging with my KC eyes. I'd need to check with another pair to be sure!

The moon was quite good - but not quite right and the halo effects on the night vision are very different for me. I can't say if it is more severe or just different

Still interesting though
Brigid

Somebody pnce put some pictures on this site (or was it the old one?) I am pretty sure that either John or Gareth will know.

thanks for these links.

Andrew

Thanks Eman. Those pictures will really help me explain to my family and friends what I see - especially the night, glare and halo ones.

The night vision picture with the traffic coming towards the camera is exactly how I see on the roads after dark. After seeing some of the other pictures shown as someone with normal sight would see them I'd love to know how the traffic picture would look to a non-KCer.

The site Eman put a link to has been put here before.

The images it shows aree much improved from the last time the link was posted.

To show people in real time what KC is like, I got some cheap safety glasses and got a friend to wear them. I then sprayed the glasses with a fine water mist which meant they saw double, could not focus and when lights were turned on they got the starburst effect which changed depending in light intensity and angle. Most people i did this too found it very hard to get up and walk round a table or pick up a pen to write their own name!

Something i find easy to do without vision, but then my brain has had time to adapt to rapid changes in vision.

Thank you Gareth

Yes I think that's it somehow. Photographs are good but they are by nature static, my vision is in almost constant flux and it is the dynamic interplay of light and movement which cannot be captured in a single image.

Squirting water onto safety glasses sounds like fun as well as educational - as a science in the early years specialist I cannot think of a higher commendation!

Brigid

Agree with brigid, the accuracy of my vision seems to change by the hour and day so the pics only go someway to illustrating the impact of KC on my vision. Although that said, the night vision example is pretty accurate.

I'm not sure I would wish to show my family and friends these images as I don't think they would ever get in a car with me again.

I was a bit alarmed to see the 'double vision moon shot' - can anyone relate to that image?

I can't Rich.

Not all of the pictures apply to me but like you the night vision ones are the most accurate. I've never been able to get my family to understand how I see light 'spreading out' and am unable to 'see through it'.

Actually none of the pictures give an exact representtion of my experience. At best they are "a bit like" and at worst they are :nothing like". Their usefulness is in that they give a suggestion to people without KC of what it is like to look at the world through KC eyes.

I do loke the suggstion of giving people a pair of safety glasses and then squirting water in their face. Should I warn them what is about to happen, or is it more fun to take them by surprise? Is it a good party game?

Seriously, anuthing that helps us tell people what we are talking about is well worth pursuing.

Andrew

I can relate to the double vision moon shots, it's exactly as I see it sometimes.

Have any of you tried finding it through a telescope, it might look nice and big and bright but it can still be a b***** to find!!!

Lesley.