UK Keratoconus Self-Help and Support Association

Had a very interesting visit to Moorfields yesterday.
I got my scleral lenses and although they make vision better i still have really bad ghosting.
We had noticed that the ghosting is much worse in my left eye. We came to the conclusion that perhaps it would be better to graft the left eye rather than the right, because it is easier to correct the vision in the right.
So the graft is on hold so that i can try the lenses. And if i do go ahead with a graft at a later date then i think we will need to rethink what eye should be done.

Now to my problem.
I can get the lenses in and out really easily. I am so suprised how easy they are. But i haven't been able to wear them because i can not get them in without air bubbles.
Has anyone got any top tips. willing to try anything

Anne

Anne,

I found that too, and was advised by Ken to use a more viscous solution to fill them. He suggested "Celluvisc" (which is available on prescription from Moorfields) which I found to be a godsend.

Of course, tucking your chin as far as it will go on to your chest helps. Then bend over EVEN MORE.

Anne,

There have been posts in the past on this very subject and most suggest a similar thing.

If memory serves you need to tuck your chin into your chest and have the lenses completly full so they pushes out the excess fluid. As a non scleral wearer this might be too simplistic.

I think Janet Manning and Susan Mason have posted good instructions in inserting sclerals so you do not get bubbles. You can look for them in the members list and send a pm or e-mail.

These are two extremely helpful ladies.

I tried my lenses again but still couldn't get them in without air bubbles,
I did wear them for about a hour still (with Air bubbles) because i do need to get used to wearing them.
Is there any reason why i should not wear them with air bubbles?
They got a little uncomfortable after a hour .!
i am so suprised at how easy they are to get in and out.I have been given the smaller version lens, So maybe that helps.
Just need to keep trying to get them in without air bubbles.

Anne

P.s booked carpet cleaner for next week. And put a ban on drinks and food in living room. What a mess. Children and hubby are in shame

Anne,

Thats the time we think to ourselves perhaps we were better off not seeing

The air bubbles just interfere a little with your sight.

What I did with my scleral was to fill it to the very brim with fluid. I then jeld it like a little cup so that the fluid was all held inside the lens, and with the lens in that position and my eye looking directly down into it I slowly lowered my eye into the little "bath" of contact lens fluid.

(I was helped in this by the fact that I always quite enjoyed eye baths).

Now, still with the lens held like a little cup I'd let go of my opper eyelid so that it held the top of the lens and tuck the lens under by lower eyelid.

Only then would I let the lens leave its "cup" position. My lens always had a "fenestration" next to the part that settled over the iris of my eye, so by blinking I could send a little jet of fluid shooting through the fenestration. with a little practise I found that it was possible to sqirt somebody standing near.

That last part had nothing to do with getting the lens on without air bubbles, it was just a bonus.

Andrew

Maybe it was just me; but I always found that with an air bubble, the cornea dried out a lot quicker, and the wearing time was seriously reduced.

That's why I switched to celluvisc to avoid the bubbles.

John

I think this works like the length of a piece of string: lots of bubbles or a very large bubble will mean that over your cornea there is free air. I guess that could lead to drying corneas or even steaming up of the lens.

Small bubbles might not have this effect. Like everything else with KC, trial and error; we find the solution to our problem that suits us best.

I was never able to use anything as viscose as celluvisc. I start off with unusually viscose tears, and too viscose lens fluid just led to my eyes cecoming clogged and claggy.


Andrew

Just a quick post as i am on a cleaning frenzy
I have my lenses in and i only have a small air bubble in the left eye right in the corner.
I searched through some of the old post yesterday and found one suggesting hanging over a bed to put your lenses in and i found this really helped (the whole family watching was a bit off putting )
My biggest problem is the ghosting and i am finding it really hard typing this. Which is such a shame because i find the lenses so comfortable.
Well iwill keep using them and things may get better. I go back to Moorfields on the 13th sept.
Im off to clean the kids bedrooms, wish me luck

Anne,

The ghosting may go with time, it did with my corneal lenses.

I put this down to one eye getting lazy as I must not of been able to see for so long. Now I do not get anything like that.

Nice to know things are improving, do your really want to see the mess that is in the kids room?

Just finished putting all Gemmas clothes ni the wardrobe from the floor. Just need to go through all her toys and try and chuck the ones she does not play with anymore.

Sent her to Tesco with mum so that should give me a couple of hours to sneak everything out.